
SO FRUSTRATED.
I spent a good part of Thursday, Friday, Monday and today trying to track down a copy of my hospital discharge summary from a few weeks ago. It was supposed to have been faxed to my pharmacy but it wasn’t and they refuse to release my meds to me until they have that document.
Needless to say I’m feeling pretty miserable. Withdrawing cold turkey from 6 medications at once is not fun. Not to mention the fact I’m not supposed to abruptly stop any of these meds without medical supervision.
Cold shivers. Pain. So much pain deep in my bones. And itchy. That part is strange. Its like my skin is crawling. And burning. Its like I’m covered in mosquito bites, except I’m not. I also haven’t slept much in over a week now so I’m also pretty tired. And the throwing up. (I don’t know if that’s fully med related though because I was vomiting before I ran out of meds on Thursday.)

Like seriously, how does an original medical document get mailed to someone then become unaccounted for?
I hope the release, albeit slowly, feels good and allows relief.
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It has taken me a long time to become even slightly ok with allowing tears. Years of emotional shutdown along with all the times where punishment was experienced because I dared to let tears escape have taught me to fear crying. I’ve been experiencing a sort of emotional thawing lately and find tears randomly surfacing. Befriending this has been super difficult. But necessary, I think.
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Stress tears cleanse, though am so sorry for so much hurt and pressure.
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What a nightmare. So sorry.
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EXACTLY!!!!!!!
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You’re not the only one irritated and angry about this, believe me. I’ve called my drs office several times now and was told she would call me this afternoon to go over things and would write a new prescription for me. But she never called. Now its the long weekend. No drs in until Tuesday. The pharmacist called the hospital herself seeking the discharge orders. But after they received it they called me and said it’s been over a week now without my meds and it’s not advisable I restart anything without seeing a dr first.
Took them a week to get when they wanted and now they’re telling me its no good and I need something different. Beyond frustrated at this point.
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I have pretty good self control with my emotions but when I was leaving a msg at my Dr’s office yesterday my voice broke and I started to cry. I felt so bad. But it was after that, that things started to actually move along. One of the few times my tears were actually validated.
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self-assertion, self-advocacy, are still issues for me to keep working on… sometimes I just have to get really pissed and the person on the other end of line can hear it and responds with more help and efficiency. (not always, there are lazy people everywhere.)
Sometimes calling back gives me a different person who is smarter and more helpful. Or becomes so annoying they find it is easier to help just to get me to quit calling.
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How about calling the family doctor and request a copy be sent to your pharmacy? Also talk to your doctor about the safety of restarting any of them since you’ve been off for a week.
The hospital still has records of you being there, and the discharge orders, because the doctor has to write them. They also are going to paid and need it for that. Talk to someone higher up?
I’m so sorry you are going through this because it seems some record clerk isn’t helping to rectify it. There has to be a medical records person, or medical professional who can read over the written doctor orders and let the pharmacy know what you’ve on.
This so irritates me, angers me.
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Apologies, I was trying to reply in the thread but it got posted as a new one.
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Ah, OK. Sounds like things here too. Not so much a health service, more like a business that doesn’t really care about its customers. (Although there can be specific people working there who do really care.)
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Accountability?! Ha!!
If you knew what the system is like here you’d know why I reacted like that.
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I like that – the squeaky wheel gets the grease. That’s so true! I’ve never heard that saying before. Will have to remember that one! 🩷
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That’s where the problem lies. The hospital made an error. My discharge papers were mailed out to my family dr and did not get first scanned into the system. There’s no record anywhere that I was actually discharged from the hospital. The one single copy is out there somewhere, unaccounted for.
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I’d call the hospital and have them fax it again. Also call you doctor and let them know you’ve been off meds for a week and ask if it is safe to restart. So sorry for all you’re going through. You are worth fighting for yourself, as we all need to do so many times. The squeaky wheel gets the grease.
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You can also request that the hospital resend a copy of your discharge papers snail mail, or email if you have a copier.
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Oh my. How frustrating. Did the hospital take accountability for not getting it sent properly?
So sorry your body is going through so much. I hope you get a resolution soon. 🤗
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It’s good you’re off so many drugs. Hang in there! 🤗
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