Those words were shared in an email response that I received from my psychologist last week. It had been a difficult session and afterwards, I spiraled. I emailed her in the midst of my upset and her brief reply ended with those words – Hope strengthens, fear kills.
Yes. I am scared. Terrified – of my own brain. I have no control whatsoever of the way it reacts to things anymore. Its like I’m dealing with a completely separate entity. I’m going about my day as if im babysitting some overly dramatic child that can’t be left alone for 2 minutes or else it’s going to get into something it’s not supposed to.
I got up after a nightmare that night and spiraled into the danger zone. I remembered that Magda (psychologist) had pointed out a couple of wins from the previous week (which I really appreciated) and she said that what I was doing was helping me grow my window of tolerance. In my frustration that night, I was like, “F* my window of tolerance. I’m not doing this”.
I want to be numb. I want to go back to the days when I was void of all emotion. I used to be so frozen inside but it’s like I’m thawing out now. I don’t want my thoughts to be so loud or sounds to be so clear. When my head was heavy and foggy and I barely even remembered conversations I didn’t have to deal with any of this stuff. My brain dissociated for a reason.
I feel like I’m going crazy. The fear is strangling me. Choking me. Killing me …
I’m afraid of what’s going to happen to me. So much fear, that I’m going to just snap, go totally crazy, lose my sanity entirely.
Fear. Its trying to kill me. The fear of uncertainty. Not knowing from one minute to the next what I’m going to think or feel. The fear that I’m not strong enough … that I might find myself completely alone and have to navigate it all by myself – again … that I’m going to collapse under all the pressure … fear that I’m going to start but never be able to stop crying …
Fear kills.
*Video clip of me in the midst of a panic attack*
BUT ….
she also said that hope strengthens. Hope. I need strength. I need hope. I’m not going to find either if I just wait around for it to fall into my lap though. So I must make it my daily goal to seek out hope. I know it exists in more than just the ink on my wrist. I see it around me. I see that other ppl have it. Its just that it never feels like there’s any for me.
If you want something in this world you have to go after it right? Well, I want to be strong. I want hope to fill me and strengthen me.
We took our Buddy boy to the vet yesterday. It was a different animal hospital this time. We’ve been less than pleased with the service from our regular vet clinic in recent months so we reached out for a second opinion.
Right eyeLeft eye
Well, what I thought would be a simple eye exam and some new medication to treat this ongoing eye infection, turned out to be way more. $843 to be exact. I’m just grateful to have had the money available on my visa. The entire experience at that animal hospital yesterday was top-notch. From the time we walked in the door we felt welcomed. The girls at the front desk were so friendly! They gave Buddy treats (and sent us home with 2 FREE bags of them) and one girl was down on the floor with him, giving him snuggles and ear rubs. Buddy was relaxed and at ease right from the start. He tends to have high anxiety where he pants and sometimes shivers, but there was none of that!
Sitting contentedly, watching another doggy leaving with his mom and being very curious about the 6 week old rescue kitten bundled up in a towel in a woman’s arms.
So, long story short, Buddy has a rare type of severe bacterial infection in both eyes, that’s made up of 3 different bacteria strains. They did a swab to check for infection and found this out. Because it’s rare, the swab is being sent to a lab in Nova Scotia to determine which combo of antibiotics will treat it. It will take 1-2 weeks to get results back. While we’re waiting he’s on Prednisone drops (steroid) to reduce inflammation.
He also has cataracts in both eyes. I’m livid that no one told us this, despite having 3 eye exams already at the other clinic. She said that unfortunately it’s progressive, which means the cataracts will gradually grow bigger and multiply and he could potentially lose his entire eyesight. In humans they do surgery but in order to get that for dogs we’d have to travel to PEI to see an optometrist. There’s an animal hospital there that performs eye surgery.
Being curious about the voices on the other side of this door
But … he’s 8 years old, and overweight. A trip like that and to undergo such a surgery would do more harm than good. Right now she said that he’s seeing ok, except there’s a big black spot in his line of vision. It didn’t happen overnight and it’s something dogs adapt very well to. He probably doesn’t even notice the fact it’s there because it’s been gradual. But, it will continue to progress. This chronic inflammation and infection needs to be cleared up because it is causing the cataracts to grow and spread faster than they should. The pressure level in his eyes was also high so she checked for Glaucoma but that was negative. Hopefully that pressure will drop down again once the infection is under control.
She then went on to say he has quite a few symptoms of diabetes. Drinks a lot more water than most dogs, is overweight, has cataracts, has high eye pressure, and the lumps/fatty cysts he has over his body are really concerning. The previous vet told me I was overreacting and to not worry so much when we brought him in about 3 golf ball-sized lumps on his chest and ribs. So ….. off he went to get bloodwork and a urinalysis.
If I stare at it long enough, maybe this door will open!
David and I went there hoping that this vet took us seriously about his eyes but she was INCREDIBLE!! She was very thorough and clearly wanted the best outcome from him and she didn’t mind taking the time to do that. She told us to leave, go get lunch, and come back in an hour to go over the results and treatment plan. They even offered to keep BOTH Buddy and Zoey there if we wanted to go in somewhere to sit down for lunch. We took them with us though because I didn’t want to leave them there in a kennel, but it was super nice of them.
Such a good boy!
Boodwork came back … no diabetes!!! Thank God. His white cell count was elevated but that’s from the infection. Also, a few things showed up with his kidneys. And his urine was extremely diluted. Similar to plain water. He should be flushing out more toxins. So there are 2 rare medical conditions that he might possibly have which would explain everything but it requires further investigation. We have to measure his water intake over 24 hrs, 2 separate times. And we need to get an early morning pee sample to bring in. Which we’ll do when we go for my next pain treatment. She’s wondering if he has what’s called Diabetes Insipidus (different from sugar diabetes).
“”Diabetes insipidus (DI) is rare in dogs, and is characterized by excessive thirst/drinking and the production of enormous volumes of extremely dilute urine. Some dogs may produce so much urine that they become incontinent (incapable of controlling their urine outflow). The irony of this disease is that despite drinking large volumes of water, the dog can become dehydrated from urinating so much.””
Being comforted by Dad, after being poked and prodded
She told us that she’s only had 2 dogs in her career with it. But she’s the ideal one to treat it because she has it herself! She told us to NEVER restrict his water intake, especially until we figure out if he has it. He can become dehydrated even with regular water intake, and it could become deadly. She said she herself has to take medication for hers and if she misses it, in less than 3 hours she’s shaking and vomiting from dehydration, even if she drinks water. It’s very scary. It has to do with the pituitary gland not producing enough of the ADH hormone.
So, that’s where we’re at. We have pet insurance on them so we should get reimbursed for 50% of our vet bills. It’s still incredibly expensive. We’ve had several vet visits for him already this year (plus several with Zoey) and each time it’s been over $200. It’s adding up fast! But my are my world and we are going to do whatever it takes to have them healthy and happy.
So tomorrow morning I’ll start measuring his water. Then in a few days I’ll do it again then call in the numbers to the vet. Then they’ll check an early morning pee because it SHOULD be more concentrated. But if it’s still very diluted it will be safe to say that he has Diabetes Insipidus and will require medication for the rest of his life.
We’re also switching both of them to a high-fiber diet. She approved of the food we feed them. But prescribed a powder that we can add each day to increase the fiber. Or we could go with prescription food. Which she said is incredibly expensive. The powder was recommended because we already feed them with a vet recommended food.
My head is still spinning from all of this. But, one step at a time, one breath at a time. Hopefully the eye swab cultures come back soon and we can get him on the proper antibiotic to clear it up.
I have Complex Regional Pain Syndrome and I don’t look sick. But every day my body is in varying degrees of pain.
In 2010 I was in a pretty devastating car crash. It turned my life upside down – literally. Among other injuries, I had my back fractured and I lost my left arm. But it was the damage from the frostbite on my feet that eventually led to a diagnosis of CRPS several years following the accident. Since developing this chronic illness, pain is something I’ve come to know on a very intimate level.
Complex regional pain syndrome – CRPS – is one of the most painful conditions known, registering a staggering 42 out of 50 on the McGill pain scale. That is worse than the pain of the amputation of a finger or toe with no anesthetic, which registers as 40 out of 50, and it is said to be worse than childbirth.
The most excruciating part is that the pain is long-term, most likely a lifelong thing. CRPS is known as the world’s most painful incurable condition. In the United States, it is referred to as the “suicide disease” because so many people resort to suicide as the only means to escape it.
Another difficult part is that CRPS is not a well-known disease. I have encountered medical professionals who don’t know what it is and I have had to explain my diagnosis to them. They often have a hard time believing the pain is as severe as I describe it. They don’t believe me that it feels like there is barbed wire wrapped around my legs. But you seem to be walking ok, they said. Or, you look like you are doing well. I can’t tell you how frustrating that part is.
So I stopped describing what my pain truly felt like to me. I don’t say that it feels like there are a hundred ice picks stuck into my spine. Instead, I just say my back burns. It seems to be more accepted that way. Which I have to admit, feels quite invalidating. In my experience, the more graphic (and accurate) the description of my pain is, the less likely I am to receive adequate treatment. So I often dial back my pain complaints. It tends to make friends and family question it’s validity becauseI look great!
So I repeat it again – you cannot judge an illness by how a person looks.
You’re not crazy. It has all been real, and it stretched you, and at times, it has felt as if it would even kill you. Their words broke your heart. Their actions broke your trust. That injury broke your body. That illness broke your hope. That circumstance broke your spirit. BUT GOD… He came to overcome it all. And guess what? It never broke you! It challenged you, and it LOST!
You’re still here. You’re not “just” a survivor. You’re a fighter. You’re a warrior. And yes, you may be covered in scars, but they are scars of deaths defeat! Your scars have become a memoir of your journey, and they tell ONLY a story of triumph!
You see, they don’t see you the same way anymore, because a warrior was birthed from the destruction and fires in your life! What was meant to kill you, didn’t and while some keep judging you for starting over, others are clapping because you never quit! You went into the flames covered in life’s grit, but came out of the fire polished in Gods grace!
The abuse, the pain, the anxiety, the bullying, the fear, the anguish, the doubt, the worry, the crushing, the pulling, the words, the moments, the days and the years – were real, but so was your strength and resilience. You did it. You survived everything they said you wouldn’t! You are still standing, and you are a WARRIOR!
My mind is constantly shifting, switching from one thought to the next, one memory to the next, one daydream to the next. I admire ppl who can focus on one task at a time and are able to lead productive lives.
I’ve been so frustrated lately with my inability to focus. I find my mind growing full of ideas for blog post topics. I wanted to make writing a central activity in my daily life once Christmas had settled down. I intended to turn writing into a therapeutic practice as well as a hobby. I love writing but I usually lack the motivation. So I decided to put my focus into growing this blog.
The only problem is that I’ve gone from unmotivated and lacking direction to becoming almost borderline obsessed with collecting ideas. I find myself super aware of things around me, even more than usual, as I search for things I can write about that would bring growth and add depth to this site.
See the thing is … while I haven’t been officially diagnosed with ADHD, I have undergone some testing and it has revealed that I do fall on the spectrum. The problem though is that the psychiatrist who I’ve been with is not at all open to the possibility of a new diagnosis. Despite having official testing done by a well respected psychologist, who did multiple different types of clinical tests to see where I am with regard to current diagnosis and other potential diagnostic possibilities … and even though she presented the findings in a written report to the psychiatrist, he was still unwilling to even consider the possibility of a new diagnosis.
Now in saying that, a diagnosis is merely another label. While it has added to the confusion I have about my identity as an individual, having a diagnosis that is agreed on by all the professionals is not completely necessary. It would certainly help me a great deal, that’s for sure! But I already KNOW I have a big problem with distraction. And focusing on one thing at a time is really difficult for me. I don’t need a diagnosis of something to know that.
But you know, I don’t think its a lack of attention that’s my problem. Quite the opposite actually. I feel like I have too much attention. I notice more than my brain is able to fully process at one time. I’m frequently distracted, yes. But not because I can’t pay attention. Its because I’m paying attention to everything. It seems like I hear more and see more and just notice more in general, than other ppl do. And that makes it super hard to fully focus on any one specific thing since I’m being distracted by all the other things that are coming at me at any given time. I have more attention than I know what to do with.
I have no idea if that makes any sense to you who is reading this because I’m trying to make … oh look! Squirrel!!
Oops. Sorry about that. So um, yeah. Where was I? Oh yes. So, I’m trying to make sense out of all of this myself to be quite honest. But if you agree/disagree or even relate in any way, feel free to leave a comment below and share your own thoughts about this topic! I’d love to hear what you have to say about this!
Her Complex Musings 
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