I Just Want To Live

Well, the comfort I was receiving from the hot water bottle was wonderful. Except, it was short-lived. Through no fault of its own though! That hot water bottle was / STILL IS an incredible tool in my Skills Box.

A lot has happened lately. Maybe a slight percentage has been a genuine response to trauma and/or illness, and not something I had complete control over …. but when you choose to do something, YOU are the reason it happens. So whatever happens is your fault, isn’t it?

I’ve put my body through absolute torture these past 2 weeks and its going to take a while to settle from it all. Unless you deal with it on your own personal level, absolutely no one will ever comprehend what its like to live with a brain that wants me dead.

I can’t help but feel a little jealous … I’m actually more than a little jealous, but I digress … of the ppl I hear and read about who also deal with depression, PTSD, eating disorders, BPD, dissociation, and so on who have found ways to still live productive lives and can maintain a level of stability that is acceptable in other ppl’s eyes. I’ve been dealing with this stuff for several decades … and I have yet to discover what ‘stable’ looks and feels like.

I don’t get angry very often but right now I feel absolutely PISSED – at everyone and everything. All I want is to be able to eat, drink, sleep, and socialize with other ppl the way other stable, functional human beings do every single day. It really isn’t that much to ask, is it?

I want to live … and experience things outside of survival. That’s all I want. I’ve totally got the survival part figured out. Now, I just want to live.

Be Gentle

Another restless night, tossing and turning, yearning for relief from the pain that’s raging in both legs and head. The demon of pain strikes much harder when vulnerabilities are high.
Tired.
Emotionally drained.
Quesy from a day of unhealthy erratic eating.
Cold.

Be gentle …

The demon of self contempt emerges from the shadows, tempting me to engage in the game we so often play. He pounces on me. Stupid! Fat pig ... More derogatory comments about being fat and choosing a Dairy Queen ice cream over black coffee. WEAK.

My quivering voice whispers, Be gentle …in return.

Be gentle …

You precious soul. I see you. I feel your pain. Breathe through it. I am with you.

Demons become angry, cursing me for allowing the presence of gentleness. Get out, they growl. How dare you show up here NOW. You’re too late. The damage is done.

Grief comes out of the shadows. Too much has been lost, she weeps.

Anger bursts forth, with vengeance. DON’T you dare give in. Gentleness doesn’t belong here.

Be gentle …

Out of the shadow creeps memory. Thoughts of the nightmare start toppling over one another. My body shivers and shakes, building momentum by the second.

Be gentle …

Fire shoots at me from the demon of harm. New pain sears it’s way into the flesh of my upper thigh and I gasp, breath catching in my throat.

Be gentle…

You darling child. I see how much it hurts. Here, hold my hand. Give me that flaming dagger. Let it go.

“Even though I walk through the darkest valley, I will fear no evil, for You are with me.” (Psalm 23)

Heavenly Father sits beside me on the cold tile of the bathroom floor and together we watch the demons fade into the darkness at the sound of His voice.

Be gentle.

Hope Strengthens, Fear Kills

Those words were shared in an email response that I received from my psychologist last week. It had been a difficult session and afterwards, I spiraled. I emailed her in the midst of my upset and her brief reply ended with those words – Hope strengthens, fear kills.

Yes. I am scared. Terrified – of my own brain. I have no control whatsoever of the way it reacts to things anymore. Its like I’m dealing with a completely separate entity. I’m going about my day as if im babysitting some overly dramatic child that can’t be left alone for 2 minutes or else it’s going to get into something it’s not supposed to.

I got up after a nightmare that night and spiraled into the danger zone. I remembered that Magda (psychologist)  had pointed out a couple of wins from the previous week (which I really appreciated) and she said that what I was doing was helping me grow my window of tolerance. In my frustration that night, I was like,  “F* my window of tolerance. I’m not doing this”. 

I want to be numb. I want to go back to the days when I was void of all emotion. I used to be so frozen inside but it’s like I’m thawing out now. I don’t want my thoughts to be so loud or sounds to be so clear. When my head was heavy and foggy and I barely even remembered conversations I didn’t have to deal with any of this stuff. My brain dissociated for a reason.

I feel like I’m going crazy. The fear is strangling me. Choking me. Killing me …

I’m afraid of what’s going to happen to me. So much fear, that I’m going to just snap, go totally crazy, lose my sanity entirely.

Fear. Its trying to kill me. The fear of uncertainty. Not knowing from one minute to the next what I’m going to think or feel. The fear that I’m not strong enough … that I might find myself completely alone and have to navigate it all by myself – again … that I’m going to collapse under all the pressure … fear that I’m going to start but never be able to stop crying …

Fear kills.

*Video clip of me in the midst of a panic attack*

BUT ….

she also said that hope strengthens. Hope. I need strength. I need hope. I’m not going to find either if I just wait around for it to fall into my lap though. So I must make it my daily goal to seek out hope. I know it exists in more than just the ink on my wrist. I see it around me. I see that other ppl have it. Its just that it never feels like there’s any for me.

If you want something in this world you have to go after it right? Well, I want to be strong. I want hope to fill me and strengthen me.

And dammit, I deserve it!

My Own Worst Enemy

Me and Zoey

After spending the last month in hospital on a psych unit, I’m in my own home tonight. I thought often of writing about my experiences while I was there but each time I would just stare at the blank screen and think things like …

Who really wants to hear about a hospital, much less a psyc unit full of crazy ppl?

What if I’m oversharing?

What if ppl start to look at me as a crazy person now?

Someone who knows me in real life might recognize me and then everyone in town will know things about me and will never look at me the same way again.

You get the idea. So I have not written anything in a month. I’ve kept myself locked up and silenced because of shame.
Well, you know what? Screw everybody! I don’t care what ppl think!

Me and Buddy

Sorry, that’s not very nice of me. I don’t mean that. I really do care what ppl think. I care too much. That’s the problem.

I need to be a little selfish and think of myself sometimes. Particularly about writing. I love to write but I’m so focused on other ppl and what they think that it prevents me from genuinely expressing myself, both in real life and online. I want to work on changing that. I want to write from my heart. I want to be genuine and honest and tell things the way I want to tell them, without shame.

I just want to relax a bit and be myself. I want to let go of the shame and judgment. I truly am my own worst enemy.

Me and David

How I Ended Up In The Psyc Ward

It all started when I went for my regular Ketamine infusion, which is part of my treatment for Complex Regional Pain Syndrome.

Felicia, the head nurse, asked if I was doing ok. She said I wasn’t looking like myself and that I was pale. I said I was good and that was all that was said. 



I remember lying back on the stretcher while they prepped me, putting heart monitoring stickers on my chest, attaching a BP cuff to my arm, oxygen in my nose … I was shivering and could feel tears running down from the corners of my eyes but i had no emotions. It was strange because that doesn’t usually happen. They took my hand to start an IV and I heard a faint voice in my head whispering – don’t touch me.

I remember turning my head to the side and just letting myself drift away. Don’t have any more memories about the treatment than that.

Once the infusion was done they wanted to talk to David. Felicia asked him how I’ve been doing lately. David later told me that he told her I’ve been purging a lot, that I’ve been quite depressed and that he’s been worried. Apparently she told him that I’m not looking well. That I was pale, my eyes were dark, and my lips were almost grey.

I was awake, my eyes were open, but I was non-responsive. My neck and head were spasming and I was staring off with no reaction when someone spoke or touched me. So they decided to keep me an extra hour to give me more fluids and more time to let the meds wear off. David asked if they felt I had taken anything and she said no because my vitals were all good. But they did bloodwork just to be sure. 

An hour later Felicia called David back in and told him that he needs to take me to the ER. Apparently I had been mumbling some things that no one could really pick out but Felicia had heard me say something about this being the end and it was almost time to die …. I don’t remember any of that. I’m just telling what I was told. 

So they put me in a wheelchair and David registered me in the ER, where I sat/slumped for 9 hours. David said I kept falling to the side as if I couldn’t hold myself up. He had to ask for a pillow and blanket to put around me to secure me a bit. He said I was in a completely different world.

Then they called us in to a small room that had nothing but 2 chairs bolted to the floor. And that’s where I spent the next 26 hours. It was nothing short of brutal.

Tears are burning my eyes now as I write that. I think it’s cruel how this was handled. They took me from the OR after having a procedure done and forced me to sit up on hard seats for a total of 36 hours. I was hallucinating. I was in terrible pain and developed a migraine. Had multiple bouts of vomiting. And I started experiencing opiate withdrawal because after I took my meds Thursday morning, I wasn’t given anything until Friday night. By that time I had missed 6 doses of morphine. It was torture.

David had to leave at one point. We had taken our dogs with us that morning. So David spent the entire day going from me in the hospital to the dogs in the car. He’d switch every hour. Take them for a walk, a drink, get them a snack then settle them in the car again before coming back in with me. But they couldn’t do that all night. So around 10pm he spoke to the staff. They assured him that I would be in safe hands and would be looked after so he left to go home with the dogs. Just before he left, he brought me in Zoey’s blanket from the car because he’d been asking for a blanket for me for 2 hrs with no luck. So I just kinda dozed off, sitting up in the chair, with Zoey’s blanket over me.

At one point I started to be more alert and I was really confused. I needed to use the bathroom but there wasn’t one so I left the room and just wandered around a bit. I went to the nurse’s station and asked if there was a bathroom and he said down the hall on the right. I roamed the hospital for a while. Took the elevator a few times, and eventually made my way back to that room. I called David, upset, wanting to know what was going on. When he realized that I was still there in that room – alone, he drove back to Grand Falls again at 4am. In the meantime, while hyperventilating and being trapped in that space with the chairs bolted to the floor, I clawed/scratched/cut my neck. 

David came, and he channeled his anger into fighting for me. He took me outside for some air then went and found a vending machine and got me a sandwich and water. I hadn’t had anything since 7am the previous day. Thankfully there was one nurse there on Friday that had a bit of respect and showed some compassion. She even gave me a little bit of her on personal toothpaste so I could brush my teeth. No one gave me a breakfast tray but she made sure there was one for me by lunch time. And she also contacted the necessary ppl to get my meds ordered. 

Then my psychiatrist came. It was still another long painful day sitting in that chair but by Friday evening I was admitted to the psyc unit.



And I’m still here. I am much more stable than I was over 2 weeks ago but still have a ways to go. Have no idea what is going to come out of this.

Join The Noise

We all have thoughts fluttering around in our minds, whispering the most absurd and brilliant things a human brain could be capable of. But when your mind is sick, the whispers become screams. They are noise that draws our attention away from reality. This noise leads to despair.

Often I found myself wanting to let go and yell back at the things inside my head. It seems as if its the only thing I can do –

join the noise.

🦋