Well, the comfort I was receiving from the hot water bottle was wonderful. Except, it was short-lived. Through no fault of its own though! That hot water bottle was / STILL IS an incredible tool in my Skills Box.
A lot has happened lately. Maybe a slight percentage has been a genuine response to trauma and/or illness, and not something I had complete control over …. but when you choose to do something, YOU are the reason it happens. So whatever happens is your fault, isn’t it?
I’ve put my body through absolute torture these past 2 weeks and its going to take a while to settle from it all. Unless you deal with it on your own personal level, absolutely no one will ever comprehend what its like to live with a brain that wants me dead.
I can’t help but feel a little jealous … I’m actually more than a little jealous, but I digress … of the ppl I hear and read about who also deal with depression, PTSD, eating disorders, BPD, dissociation, and so on who have found ways to still live productive lives and can maintain a level of stability that is acceptable in other ppl’s eyes. I’ve been dealing with this stuff for several decades … and I have yet to discover what ‘stable’ looks and feels like.
I don’t get angry very often but right now I feel absolutely PISSED – at everyone and everything. All I want is to be able to eat, drink, sleep, and socialize with other ppl the way other stable, functional human beings do every single day. It really isn’t that much to ask, is it?
I want to live … and experience things outside of survival. That’s all I want. I’ve totally got the survival part figured out. Now, I just want to live.
There have been many moments lately where I have hidden in my bathroom because life has become too heavy to bear. I wonder if I will ever get the chance to just be myself again. Everything has gotten so complicated lately.
The things that are necessary to be happy are currently not present. I am exhausted, in more ways than one. But I’m still getting up and crawling my way through each day.
Sometimes I squeeze my eyes shut and block everything out to remind myself that I’m human and to breathe. I am trying to teach myself that it’s ok to take a break.
It’s also ok to indulge yourself with whatever sliver of happiness you can find that will help strengthen and recharge you. Whether you make a cup of your favorite tea and sit by the Christmas tree as you drink it, go for a walk, or throw a ball around in the backyard with your dog. If it satisfies even the smallest part of you, it’s worth the effort.
December is a hard month for a lot of ppl. Myself included. Its going to be very easy to get swept up and completely lose ourselves over the next few weeks. So from one struggling human to another …
You can do this. WE can do this! Take a breath. Then another. Drink some water and get some sleep. Then do the next thing. We will make it through December!
After spending the last month in hospital on a psych unit, I’m in my own home tonight. I thought often of writing about my experiences while I was there but each time I would just stare at the blank screen and think things like …
Who really wants to hear about a hospital, much less a psyc unit full of crazy ppl?
What if I’m oversharing?
What if ppl start to look at me as a crazy person now?
Someone who knows me in real life might recognize me and then everyone in town will know things about me and will never look at me the same way again.
You get the idea. So I have not written anything in a month. I’ve kept myself locked up and silenced because of shame. Well, you know what? Screw everybody! I don’t care what ppl think!
Me and Buddy
Sorry, that’s not very nice of me. I don’t mean that. I really do care what ppl think. I care too much. That’s the problem.
I need to be a little selfish and think of myself sometimes. Particularly about writing. I love to write but I’m so focused on other ppl and what they think that it prevents me from genuinely expressing myself, both in real life and online. I want to work on changing that. I want to write from my heart. I want to be genuine and honest and tell things the way I want to tell them, without shame.
I just want to relax a bit and be myself. I want to let go of the shame and judgment. I truly am my own worst enemy.
It all started when I went for my regular Ketamine infusion, which is part of my treatment for Complex Regional Pain Syndrome.
Felicia, the head nurse, asked if I was doing ok. She said I wasn’t looking like myself and that I was pale. I said I was good and that was all that was said.
I remember lying back on the stretcher while they prepped me, putting heart monitoring stickers on my chest, attaching a BP cuff to my arm, oxygen in my nose … I was shivering and could feel tears running down from the corners of my eyes but i had no emotions. It was strange because that doesn’t usually happen. They took my hand to start an IV and I heard a faint voice in my head whispering – don’t touch me.
I remember turning my head to the side and just letting myself drift away. Don’t have any more memories about the treatment than that.
Once the infusion was done they wanted to talk to David. Felicia asked him how I’ve been doing lately. David later told me that he told her I’ve been purging a lot, that I’ve been quite depressed and that he’s been worried. Apparently she told him that I’m not looking well. That I was pale, my eyes were dark, and my lips were almost grey.
I was awake, my eyes were open, but I was non-responsive. My neck and head were spasming and I was staring off with no reaction when someone spoke or touched me. So they decided to keep me an extra hour to give me more fluids and more time to let the meds wear off. David asked if they felt I had taken anything and she said no because my vitals were all good. But they did bloodwork just to be sure.
An hour later Felicia called David back in and told him that he needs to take me to the ER. Apparently I had been mumbling some things that no one could really pick out but Felicia had heard me say something about this being the end and it was almost time to die …. I don’t remember any of that. I’m just telling what I was told.
So they put me in a wheelchair and David registered me in the ER, where I sat/slumped for 9 hours. David said I kept falling to the side as if I couldn’t hold myself up. He had to ask for a pillow and blanket to put around me to secure me a bit. He said I was in a completely different world.
Then they called us in to a small room that had nothing but 2 chairs bolted to the floor. And that’s where I spent the next 26 hours. It was nothing short of brutal.
Tears are burning my eyes now as I write that. I think it’s cruel how this was handled. They took me from the OR after having a procedure done and forced me to sit up on hard seats for a total of 36 hours. I was hallucinating. I was in terrible pain and developed a migraine. Had multiple bouts of vomiting. And I started experiencing opiate withdrawal because after I took my meds Thursday morning, I wasn’t given anything until Friday night. By that time I had missed 6 doses of morphine. It was torture.
David had to leave at one point. We had taken our dogs with us that morning. So David spent the entire day going from me in the hospital to the dogs in the car. He’d switch every hour. Take them for a walk, a drink, get them a snack then settle them in the car again before coming back in with me. But they couldn’t do that all night. So around 10pm he spoke to the staff. They assured him that I would be in safe hands and would be looked after so he left to go home with the dogs. Just before he left, he brought me in Zoey’s blanket from the car because he’d been asking for a blanket for me for 2 hrs with no luck. So I just kinda dozed off, sitting up in the chair, with Zoey’s blanket over me.
At one point I started to be more alert and I was really confused. I needed to use the bathroom but there wasn’t one so I left the room and just wandered around a bit. I went to the nurse’s station and asked if there was a bathroom and he said down the hall on the right. I roamed the hospital for a while. Took the elevator a few times, and eventually made my way back to that room. I called David, upset, wanting to know what was going on. When he realized that I was still there in that room – alone, he drove back to Grand Falls again at 4am. In the meantime, while hyperventilating and being trapped in that space with the chairs bolted to the floor, I clawed/scratched/cut my neck.
David came, and he channeled his anger into fighting for me. He took me outside for some air then went and found a vending machine and got me a sandwich and water. I hadn’t had anything since 7am the previous day. Thankfully there was one nurse there on Friday that had a bit of respect and showed some compassion. She even gave me a little bit of her on personal toothpaste so I could brush my teeth. No one gave me a breakfast tray but she made sure there was one for me by lunch time. And she also contacted the necessary ppl to get my meds ordered.
Then my psychiatrist came. It was still another long painful day sitting in that chair but by Friday evening I was admitted to the psyc unit.
And I’m still here. I am much more stable than I was over 2 weeks ago but still have a ways to go. Have no idea what is going to come out of this.
We took our Buddy boy to the vet yesterday. It was a different animal hospital this time. We’ve been less than pleased with the service from our regular vet clinic in recent months so we reached out for a second opinion.
Right eyeLeft eye
Well, what I thought would be a simple eye exam and some new medication to treat this ongoing eye infection, turned out to be way more. $843 to be exact. I’m just grateful to have had the money available on my visa. The entire experience at that animal hospital yesterday was top-notch. From the time we walked in the door we felt welcomed. The girls at the front desk were so friendly! They gave Buddy treats (and sent us home with 2 FREE bags of them) and one girl was down on the floor with him, giving him snuggles and ear rubs. Buddy was relaxed and at ease right from the start. He tends to have high anxiety where he pants and sometimes shivers, but there was none of that!
Sitting contentedly, watching another doggy leaving with his mom and being very curious about the 6 week old rescue kitten bundled up in a towel in a woman’s arms.
So, long story short, Buddy has a rare type of severe bacterial infection in both eyes, that’s made up of 3 different bacteria strains. They did a swab to check for infection and found this out. Because it’s rare, the swab is being sent to a lab in Nova Scotia to determine which combo of antibiotics will treat it. It will take 1-2 weeks to get results back. While we’re waiting he’s on Prednisone drops (steroid) to reduce inflammation.
He also has cataracts in both eyes. I’m livid that no one told us this, despite having 3 eye exams already at the other clinic. She said that unfortunately it’s progressive, which means the cataracts will gradually grow bigger and multiply and he could potentially lose his entire eyesight. In humans they do surgery but in order to get that for dogs we’d have to travel to PEI to see an optometrist. There’s an animal hospital there that performs eye surgery.
Being curious about the voices on the other side of this door
But … he’s 8 years old, and overweight. A trip like that and to undergo such a surgery would do more harm than good. Right now she said that he’s seeing ok, except there’s a big black spot in his line of vision. It didn’t happen overnight and it’s something dogs adapt very well to. He probably doesn’t even notice the fact it’s there because it’s been gradual. But, it will continue to progress. This chronic inflammation and infection needs to be cleared up because it is causing the cataracts to grow and spread faster than they should. The pressure level in his eyes was also high so she checked for Glaucoma but that was negative. Hopefully that pressure will drop down again once the infection is under control.
She then went on to say he has quite a few symptoms of diabetes. Drinks a lot more water than most dogs, is overweight, has cataracts, has high eye pressure, and the lumps/fatty cysts he has over his body are really concerning. The previous vet told me I was overreacting and to not worry so much when we brought him in about 3 golf ball-sized lumps on his chest and ribs. So ….. off he went to get bloodwork and a urinalysis.
If I stare at it long enough, maybe this door will open!
David and I went there hoping that this vet took us seriously about his eyes but she was INCREDIBLE!! She was very thorough and clearly wanted the best outcome from him and she didn’t mind taking the time to do that. She told us to leave, go get lunch, and come back in an hour to go over the results and treatment plan. They even offered to keep BOTH Buddy and Zoey there if we wanted to go in somewhere to sit down for lunch. We took them with us though because I didn’t want to leave them there in a kennel, but it was super nice of them.
Such a good boy!
Boodwork came back … no diabetes!!! Thank God. His white cell count was elevated but that’s from the infection. Also, a few things showed up with his kidneys. And his urine was extremely diluted. Similar to plain water. He should be flushing out more toxins. So there are 2 rare medical conditions that he might possibly have which would explain everything but it requires further investigation. We have to measure his water intake over 24 hrs, 2 separate times. And we need to get an early morning pee sample to bring in. Which we’ll do when we go for my next pain treatment. She’s wondering if he has what’s called Diabetes Insipidus (different from sugar diabetes).
“”Diabetes insipidus (DI) is rare in dogs, and is characterized by excessive thirst/drinking and the production of enormous volumes of extremely dilute urine. Some dogs may produce so much urine that they become incontinent (incapable of controlling their urine outflow). The irony of this disease is that despite drinking large volumes of water, the dog can become dehydrated from urinating so much.””
Being comforted by Dad, after being poked and prodded
She told us that she’s only had 2 dogs in her career with it. But she’s the ideal one to treat it because she has it herself! She told us to NEVER restrict his water intake, especially until we figure out if he has it. He can become dehydrated even with regular water intake, and it could become deadly. She said she herself has to take medication for hers and if she misses it, in less than 3 hours she’s shaking and vomiting from dehydration, even if she drinks water. It’s very scary. It has to do with the pituitary gland not producing enough of the ADH hormone.
So, that’s where we’re at. We have pet insurance on them so we should get reimbursed for 50% of our vet bills. It’s still incredibly expensive. We’ve had several vet visits for him already this year (plus several with Zoey) and each time it’s been over $200. It’s adding up fast! But my are my world and we are going to do whatever it takes to have them healthy and happy.
So tomorrow morning I’ll start measuring his water. Then in a few days I’ll do it again then call in the numbers to the vet. Then they’ll check an early morning pee because it SHOULD be more concentrated. But if it’s still very diluted it will be safe to say that he has Diabetes Insipidus and will require medication for the rest of his life.
We’re also switching both of them to a high-fiber diet. She approved of the food we feed them. But prescribed a powder that we can add each day to increase the fiber. Or we could go with prescription food. Which she said is incredibly expensive. The powder was recommended because we already feed them with a vet recommended food.
My head is still spinning from all of this. But, one step at a time, one breath at a time. Hopefully the eye swab cultures come back soon and we can get him on the proper antibiotic to clear it up.
Identifying how I’m feeling has always been difficult for me. Although I must admit, I have come a long way in that area in recent years. In the past if you had asked me at any given point how I was feeling I wouldn’t have been able to answer you. I lacked not only the vocabulary necessary to describe the feelings but also the introspection. I had no concept whatsoever of emotions, what they were, or how they felt. I also had no idea that emotions also come with bodily sensations and could actually be felt in the body.
I have a much better understanding these days of feelings, though it’s not something that comes naturally. My first response to how I’m feeling is still the usual “I don’t know”, but I am learning how to pause and go inward. I take a moment to investigate and I can usually come up with something that somewhat describes my current emotional state.
Something else I also struggle with is identifying emotions and facial expressions in other people. I misinterpret a lot and it has led to many misunderstandings. I get insecure about not being able to pick up on emotions in other people so I observe, and I use what I see to figure out what the other person is feeling. The problem with that is that more often than not, I’m wrong. That slight shift in a facial expression does not always mean what I think it does. A raised eyebrow may make me think that the other person disapproves of something I said but that might not be the case at all. The other person may in fact be impressed, surprised, or even intrigued by what I had said.
For a long time I didn’t even know I struggled with emotions. I just thought I didn’t have very many. I’m almost always “OK” if you were to ask. It seems like that’s all I ever knew how to be. I couldn’t identify sadness, joy, excitement, contentment, and certainly not anger. I’ve spent my life so detached from myself that I had no idea these things even existed in me. Growing up I experienced a lot of unwanted emotions and as I got older they seemed to have just flattened out. I stopped feeling the varying intensities and the window of what I could actually feel grew extremely small.
So here I am, at the age of 42, realizing that I don’t know what it actually means to feel a certain way. And I have a very low tolerance for anything that takes me away from “OK”. Sitting with a feeling is a fairly new concept in my world and it’s turning out to be one of the most excruciating things I’ve ever experienced. My system jumps into high alert whenever I sense any sort of emotion inside of me. Whether my heart rate begins to speed up from excitement, fear, anticipation, lust, pain, joy, or whatever else may come up, my brain reacts in a way that propels me towards behaviors that shut it all down. I am working on this though.
A few weeks ago my therapist used the word alexithymia to describe one’s inability to identify and describe emotions. It is a word I had never heard before. I had no idea that my difficulties with emotions were something that other people out there experience as well. I thought it was just another thing I was bad at. One more thing on my never-ending list of character flaws. Something else that other people do with zero effort but requires so much work on my part. Another complexity. Another failure. Another fault.
But I’m beginning to realize that’s not the case at all! Alexithymia is a real thing that is not a character flaw! It’s not because I’m too stupid to understand emotions. It’s not because I’m an air-head, or that I’m dumb, or careless. It’s not because I’m a cold-blooded person who has no heart. It’s something that’s actually more common than I realized. So much so that it has warranted a label of its own.
So I just want to say that if you’re reading this and you find yourself relating to my experience in any way, I encourage you to do a little reading about alexithymia. It might very well help you understand why you feel (or don’t feel) the way that you do. There are a few websites in particular that I found really great at explaining it. I don’t usually post outside links here but if you are interested, feel free to ask and I will gladly share. It could open up a door to a completely new way of seeing things! Please be gentle with yourselves today. You all deserve it!
I had my Ketamine infusion on Thursday This time was harder than the others have been over the past few months. Maybe because I was dehydrated …? I don’t know. But … I honestly did not think I was that dehydrated though. It never even crossed my mind when I went in there. I could tell that one of the regular nurses started to get frustrated. She said my veins were even smaller than they usually are. It took her quite a while to locate one that she would even attempt to put an iv into. She started sweating and I felt soooo bad. I wish I could have just pointed to a spot anywhere on my body and said, there’s a vein! But there were literally no visible veins to be found.
So then came the manual search. She was gentle, like she usually is, but even just running a finger over my skin and some light tapping hurt. I felt as if I was covered in bruises. Except I wasn’t. I was just cold. After her 3rd failed attempt she called over another nurse who started with my hand, then worked her way up my arm, poking and patting and rubbing to try and get a vein to swell up enough for an iv needle to thread into. She said something about my arm being cold and commented on the fact that I appeared to be quite dehydrated. Something about the elasticity of my skin. I can’t remember exactly what it was that she said.
By this point the shivering had started. The first nurse took my socks off and started rubbing the top of my foot while the other one made several attempts at what she thought were strong veins. I had been fighting with every bit of strength I had to hold back tears but after another failed attempt at yet another promising vein – in my foot this time – a sob came out of my mouth. It actually took me off guard because I was not expecting it. I thought that the imaginary valve in the back of my throat was secure in the closed-off position but the force behind that sob blew right through it.
Somewhere along the line a 3rd nurse had come over and was rubbing my other foot. I didn’t remember her coming. It’s like she just appeared. She rubbed my leg and said, I’m only going to try once and if I don’t get it we’ll have to call Jackie. Jackie is one of the anaesthesiologists in the hospital and has been called on more than one occasion to come and place an iv in me. She’s never had to poke me more than 2 times and more often than not she got it in on the first try.
So that’s what happened. They called Jackie. In the meantime the nurses tidied up around my bed and got me a clean, warm blanket. They had used the other one to catch blood that had ran down my arm. They said they were going to give me a little break and then left me alone for a few minutes. I turned over on my side and held the blanket against my mouth and nose. I didn’t want anyone to hear me cry.
I stared at the curtain and just started praying. God, I can’t handle this … It’s too much. It hurts … it hurts all over. It doesn’t usually hurt this much. I don’t want them to touch me anymore. God, please … this is torture … I can’t …….... I know you’re here. You’re always with me. You tell me you’ll never leave me and I can come to you anytime. Well, I’m here and I really need you to be here too right now. God, please … make it stop ...
Jackie pulled up a chair and sat at the foot of my bed after a brief look over my arm and not finding anything of interest. She started rubbing my foot with her hands, to try and warm them up, she said. She told me to try and relax and to take a few deep breaths. With that little bit of compassion from her, I felt a fresh stream of tears run down from the corners of my eyes. She told me that if I take a few deep breaths it will help the blood to flow better through my veins and that my blood needs oxygen to flow properly.
Every time I tried to inhale my breath kept catching in my throat, which in turn led to a small gasp to get it back. It took several attempts before I got a good breath in but it really helped. I had started to feel like I was floating away. After a few good breaths I started to feel the bed beneath me again and I could feel Jackie patting the top of my foot. She spoke and told me to, stay really still now. I instantly lost my breath again. I felt the needle pierce the top of my foot and she slowly went deeper. I heard the click of the release button, indicating the iv was threaded into the vein and could be released from the needle. It’s in, she said. You need to breathe ….
And that’s all I remember. That was around 11am on Thursday. The next clear moment was when I felt Zoey’s wet nose against my arm around 9am Friday morning. Ketamine has that effect on me. It tends to wipe my memory clean of almost everything for 12 – 24 hours following the infusion.
My head felt like it had been smashed against a wall when I lifted it off my pillow this morning. I did a quick body scan to see if there was pain anywhere else. Nope. All clear! The first 24 – 48 hours after my Ketamine infusions are the closest I get to being ‘pain-free’. Today offered little space to appreciate the low pain level though. It was a freaking emotional roller-coaster inside of me today. Tears began shortly after I got up. I was washing my face and noticed that one of my earrings had fallen out at some point. This big wave of sadness just swept right over me and tears started falling. Wasn’t expecting that!
A little while later I was laying back on the couch and David was sitting on the opposite end. We were watching an episode of Station 19 on TV together and there was an intimate scene between a husband and wife. More tears … and no words to explain.
And that’s how the day has been. Little random things causing waves of tears. I was outside planting some things my therapist gave me, and tears were flowing. I accidentally bumped my leg, more tears. David called out and asked me to come outside so he could show me something and I cried while I walked out across the garden. Then just before I got in the shower I sat on the bench in the bathroom and cried even more. Like seriously. There was no end to the tears. And it all felt like it came from a gut-wrenching sadness that had tremendous force behind it. It could not, would not, be stifled.
The day is over now. It is late, or early, depending on how you see 3am. I’m reluctant to go to bed, as I sometimes find being in a horizontal position also heightens my emotions. And I’m feeling pretty raw as it is. But we are going out of town tomorrow, for the night. On Sunday our God-daughter has her very first communion and we’d like to be there with her. My face is swollen. My eyes are bloodshot and puffy. And my mood is all over the place. But the very least I can do is attempt to get a few hours of rest. Even if that means just lying still, with my eyes closed, while my brain continues trailing off.
Stillness is not effortless for me. It takes work sometimes. Wellness takes effort and I’m trying my best to do what I have to do, even when I don’t want to. Do what you have to do to make it to see one more sunrise. 🌻
I wondered why the clocks didn’t stop On that day. My world stopped spinning When I walked into the bathroom and found you submerged in a bathtub full of bloody water. I wondered how the rest of the world could keep going Without you here. You took a piece of me with you On that day. But I forgive you. I’d forgive you a million times over if it would bring you back to me.
I sweep the shower curtain aside. A few water droplets fall from my hair before gliding down over my bare chest. My skin is bright red from the hot water. Steam rolls out through the window that was slightly ajar. It’s been a busy weekend, but it’s over now and we’re back home again.
It’s mid afternoon and David is in lying down, trying to catch a nap before he heads in to work tonight. Last night was a late one for us. Being the designated driver David spent the early hours of the morning taking ppl home. It was almost 4am when our heads finally touched the pillow. 5 hours later we were back in the car again. Thank God we are home. So while he rests, with the dogs curled up beside him, I go off to shower and calm myself down. In my own shower. In my own bathroom. In my own house. Safety.
The scalding water distracted me from the thoughts that had been swirling around in my mind. The tension that was trapped in my body that had been brought on by so much overstimulation, washed off me freely, mixed with the coconut body wash.
But the second I stepped out and my foot touched the towel that was on the floor, something didn’t feel right. The hair rose on the back of my neck. Goosebumps covered my arm and legs. The frantic beating of my heart became confused with memories of someone pounding on the door. Oh my god … there was someone else in the house.
Fear wound itself around me at the thought and circulated within my mind until it flooded my entire body with panic. I pulled the bath towel tighter around me in a lame attempt to suffocate the terror. Then, I reached for the doorknob and my hand lingered there. I couldn’t turn the knob, my mind was bombarded with images of who could be waiting for me on the other side of the door.
I pulled my hand away from the door, my lungs …too paralyzed to breathe. My shoulders trembled as I held back the cry that was threatening to escape from my throat. I forced my hand over my mouth to block it. Backing up, I felt the bench on the back of my legs and I let myself fall onto the seat. What the heck is wrong with me??!
I reached for my phone on the sink next to me. Placing my thumb on the screen it recognized my fingerprint and unlocked itself. I instantly searched for David’s name and opened up a new msg window. I knew he was asleep but assumed the sound of his phone receiving a new msg would stir him. ‘Are you awake?’
I stared at the screen, silently pleading for him to pick up his phone, a feeling of something dreadful happening consumed me. No response. I msged him again. ‘I’m really sorry for bothering you. I know you’re tired, my honey. But can you get up for a minute?’
Still no response. I thought of calling instead. The ring is louder than the new msg notifications. But that would mean I would also be required to speak. I couldn’t do that. My voice was currently non-existent.
A sob got stuck in my throat and my body trembled. I felt the sting of tears on my cheeks. Panic was pulsing through my veins. I thought to myself, “This is insane. There is nothing out there. There is no one out there! This is ridiculous. Why am I so scared??” I remembered that I needed to breathe. I have a tendency to hold my breath in moments like this and have been working on becoming more aware of it. I take in a small, shakey breath through my nose. “That was then … this is now. That was then … This is now.“
I repeated the familiar words to myself several times. I stood up from the bench I had been sitting on, and reached for the doorknob again. As my fingers touched it panic surged, threatening to drown out the mantra i had just been repeating to myself. Thatwasthen … this is now. Slowly I turned the knob and opened it ever so slightly. My chest burned from needing to exhale, but the grip of terror was strangling my throat.
I paused, waiting for that looming, dark figure to inch his way into the bathroom … but he didn’t. And suddenly I realized that it had happened again. My brain had forgotten where we were.
It’s 2024 … you’re in your own house … David is here … he’s asleep … you’re here in your own bathroom …
I turned on the tap and splashed cold water on my face. My lungs began to relax and I took a few shakey breaths. I grabbed my robe and pulled it close around my body, letting the towel fall to the floor. Feeling ashamed and broken I left the bathroom and went to our room. I quietly positioned myself on the bed next to David, sound asleep. A few silent tears fell before I cuddled in closer to his back. The warmth of his body against mine reminded me once again …
My mental health has been on a steady decline for a couple of months now. There’s been a lot that’s happened, in succession, and the stress of it all has been accumulating. Trying to manage both physical and mental illnesses why all this life stuff has been coming at me was too much and I crashed. As a result, every area of my life is now suffering.
A little over 2 weeks ago something inside of me just cracked and I attempted to end my life. In a moment of desperation, needing the mental anguish to just stop, I chose what I thought would be the solution.
After spending the past 2 weeks in the hospital, in the Intensive Care Unit, here I am sitting in the car with my husband, as we travel to his parents’ place for a 60th birthday celebration (tomorrow). I was discharged yesterday, after being cleared as well enough to leave. I feel a million miles away right now. Certainly not in the frame of mind for a party. I really don’t want to be around people.
Can I just say one more thing?
Our health care system here in Newfoundland, Canada is … I’m biting my tongue here because every word coming to mind could get me banned from WordPress … so I’m just going to say … it SUCKS.
It’s sad. Based on my own experiences my heart aches for those needing services. If it happened to me then I’m sure it’s happening to countless others.
In my opinion, if someone almost successfully takes their life and then sits in front of you and says they are not able to function because they are so mentally unwell, I don’t this it’s even sensible to suggest they develop a better sleep routine and that you’ll chat with them in 6 to 8 weeks.
You’re not crazy. It has all been real, and it stretched you, and at times, it has felt as if it would even kill you. Their words broke your heart. Their actions broke your trust. That injury broke your body. That illness broke your hope. That circumstance broke your spirit. BUT GOD… He came to overcome it all. And guess what? It never broke you! It challenged you, and it LOST!
You’re still here. You’re not “just” a survivor. You’re a fighter. You’re a warrior. And yes, you may be covered in scars, but they are scars of deaths defeat! Your scars have become a memoir of your journey, and they tell ONLY a story of triumph!
You see, they don’t see you the same way anymore, because a warrior was birthed from the destruction and fires in your life! What was meant to kill you, didn’t and while some keep judging you for starting over, others are clapping because you never quit! You went into the flames covered in life’s grit, but came out of the fire polished in Gods grace!
The abuse, the pain, the anxiety, the bullying, the fear, the anguish, the doubt, the worry, the crushing, the pulling, the words, the moments, the days and the years – were real, but so was your strength and resilience. You did it. You survived everything they said you wouldn’t! You are still standing, and you are a WARRIOR!
Reading is so friggin frustrating. Books used to be my escape. Growing up I was an avid reader. I never went anywhere w/o a book and I usually had more than one going at a time. There’d be one in my bedroom that I’d be reading, I’d have another that I’d carry around with me and I’d read a few pages whenever I had a few minutes to spare, and then I’d have a 3rd that I would read at night in the bath. I’d soak in a hot bubble bath and read until the water went cold. When I was in high school that’s how I’d also do my studying for exams. And I’d have no trouble whatsoever keeping the storylines straight when switching between books.
Now I can’t even keep focused on one and I hate that. I’d give anything to be able to pick up a book and read like that again.
I love books. The smell of the paper when you open a book for the first time. Mmmm. One of the best smells ever! But reading is super frustrating. It could be a book or an article online. Blog posts. Anything really. Unless it’s something I am extremely interested in. Then I can soak up every single word. But generally, reading is a real challenge.
I will read the page, but after I get to the bottom of that page I realize that I was thinking about something else and didn’t really read the page even though I was reading. I know, sounds stupid.
So, I read it again. I read a few sentences and by the time I get to the bottom of the page … same friggin thing. So I read it over again … concentrating this time. But I get distracted by the fact that I am concentrating …
By this point, I have read, and absorbed maybe half of the page. This is no exaggeration. In fact, this is more of a watered-down version of actual events.
Like seriously. Something so simple as reading a book is such a frustrating thing for me. I have a shelf, lined with books waiting to be read and all I can do is avoid them.
They merely serve as a reminder of yet another thing that is extra difficult for me.
Oh, how I wish self compassion wasn’t so hard for me. It’s like my brain purposely goes against it. It doesn’t come natural. There’s a part of me that tends to speak in a compassionate way yet she gets knocked down repeatedly. Kind words spoken to self makes the demon mad.
When things are quiet in my mind and I sense safety in my body my thoughts are more productive, kinder towards myself, hopeful, truthful, encouraging, calming … they’re healthy. But more often than not my system is fired up. I yearn to feel safety but it’s a very rare thing for me.
I try and make the best of what I have. But the slightest little thing pushes me into high alert and my system begins firing threat signals. A sound, a smell, a cell phone notification, a car door, a movement, a bodily sensation … these things all crush my sense of safety and my body takes over. My heart rate shoots up, trembling overwhelms my body, sleeplessness haunts me at night and exhaustion plagues me by day.
I want solitude. I want healing. But it’s so far out of reach that it’s a waste of time to even try.
26. Can you whistle? Slightly. I can make a sound but that’s about it 27. Where were you born? Grand Falls, NL Canada 28. Any Surgeries? 2 (repair of shoulder following a traumatic arm amputation. And a knee repair) 29. Piercings? 6 30. Shower or bath? Shower 31. Last song you heard? Amazing Love 32. Broken bones? Cheek bones, nose, chin, 5 fractures along my spine, 2 toes 33. How many TV’s in your home? 2 34. Worse pain? Recovering from a car accident was brutal from a physical standpoint. But the worst pain I’ve ever felt was deep within my being. Mental illness was destroying my mind as well as my body and I was crying out to God to let me die. That is a pain unlike any other. 35. Do you like to sing? Yes 36. Are your parents still alive? Yes 37. Do you like to go camping? Love it!! 38. What do you binge watch? All the medical drama shows … 9-1-1/Grey’s Anatomy/The Good Doctor/New Amsterdam etc 39. Favorite Pie? Oooohh. That would definitely have to be cherry 40. Favorite time of day? Sunrise. The darkness is leaving and a new day is dawning 41. Chocolate or vanilla? Definitely vanilla 42. Have you ever been on a plane? Yes. I flew to Ontario to a rehab center then flew back home several months later, clean, sober, and alive! 43. What did you want to be when you grew up? A social worker 44. What is the best job you ever had? I absolutely loved working as an early childhood educator at a local daycare and preschool center 45. Favorite movie? Girl Interrupted 46. Christmas or Halloween? Christmas all the way!! 47. What color is your toothbrush? Purple 48. Bad habits? Skipping meals, not opening mail right away, ignoring the signals my body sends me 49. Last person you hugged? David (husband) 50. What is one thing you could talk about for hours? My dogs!
1. Do you put ketchup on hotdog? Not a fan of either 2. Choice of pop? Sprite Zero 3. Do you put salt on watermelon? What?! Ppl actually do that?? Gross!! 4. Can you swim? No. Never learned as a child. Too afraid of losing my breath. 5. How do you eat your steak? Well done 6. Favorite food? Soups 7. Do you believe in ghosts? The Holy ghost and evil spirits 8. What do you drink in the morning? Cranberry juice and water (half and half) 9. Can you do 100 push ups? Hahaha!!!! Yeah right. 10. Summer, Winter, Spring, Fall? Fall. Gotta love hoodie weather 11. Favourite animal? Dogs! Guinea pigs are a close second 12. Tattoos? 5 (so far) 13. Do you wear glasses? yes but not all the time 14. Do you have any fears in this crazy world? Yeah, more than I’d like to admit 15. Do you have a nickname? Angel 16. Favorite Candy? Gummy bears are the best. Duh. But there’s no candy in existence that I would not try. Especially if they’re sour. 17. Favorite smell? Salt water air 18. Rain or Snow? Snow. The dogs like it better and it’s not as messy 19. Can you change a tire? No. I don’t drive. 20. Favorite flower? I very much prefer house plants 21. Can you drive a stick? Nope 22. Kids? Two (they have 4 legs and lots of fur) 24. Favorite colour? Black or pink 25. Food you refuse to eat? Rabbit meat, seal meat, anything spicy
Christmas was … different … this year. I usually enjoy the overall feeling of the season but its like that christmassy feeling was non-existent this year. I don’t know if its because I was in the hospital or maybe its because my pain level has been so high, but December month brought a lot of sadness.
A different kind of sadness though. The kind where it felt as if my heart was literally aching. I found myself frequently holding back tears. There’s been such a deep yearning in my soul. A longing for things I dont have and can’t do. Its the kind of sadness that comes with grieving for a lost loved one, wishing you could have just 5 more minutes with them. Except no one has died. It’s a sadness that reaches right down to my core.
All the hype about the holidays portrays big, happy families gathered around each other, enjoying lots of food and presents, baking cookies, decorating trees together, small children full of excitement, couples building snowmen and having snowball fights, shopping and buying all sorts of things, and so on. All the images say we should be happy. But what about those who have no family near them and they have very small social circles? Or those who are unemployed and can’t afford to buy things for anyone outside of their immediate family? What about couples going through a divorce? Or those in abusive relationships and live in fear of saying the wrong thing? And, what about those who are not able to have children of their own?
Enjoying some quality time with my good friend’s kidlettes ♡
David and I went to this one particular event together. A community dinner served by the Evangel Pentecostal Church that was followed by a selection of musical performances. There was another family at our table with their 5 year old little girl and she became the highlight of our night. The joy just emanated from her. She was wearing an adorable red dress, her hair in pig tails, complete with red bows. She was so happy, so excited, so … innocent.
(Stock photo)
I had a lump in my throat the whole evening, making it very hard to swallow my meal. Santa came and called the kids up front and she was just vibrating with excitement. We watched her as she went up and as she looked over at her mom, waving as they took her picture, I couldn’t hold back the tears any longer. It felt like my heart was just shattering inside my chest. I had to excuse myself and blindly made my way to the bathroom, where I covered my mouth and spent a good 5 minutes sobbing, silently. After touching up my make up I went back to the table and sipped coffee as if nothing had ever happened.
I wear the mask quite well.
Sometimes infertility hits ppl at the most random times and this christmas was one of those times for me. I feel like I have to keep it to myself because I know David deals with a lot of guilt about not being able to give me a child of our own. If he was to see me during these moments it would just make it much worse for him and I don’t want that. Except I also don’t like how isolating this is. I wish I knew how to turn this into something we could go through together. I wish I could let myself be vulnerable and let my own husband see those hurting parts of me. Except I retreat into my shell and hide … the only thing I’m actually good at.
For the first time in weeks I feel a little bit like myself again. Its probably been more like months but the few weeks have been especially challenging. My mental health has been on a steady decline since the summer came to a close and then I took a nose dive and crashed head first into rock bottom.
There was no one single incident that took place to push me over the edge. I’d been fighting to hold on for a while and my rope just grew so thin that it broke. I’ve been so tired. Just the simple daily stuff has even been too much. Folding laundry had been leading to meltdowns. Once 2 then 3 baskets became filled with clean clothes I’d sit and cry because there was no basket for the dirty stuff. My husband walked in one day and found me sitting on the couch with a towel in my hand, sobbing. I had gotten out of the shower and our 3 laundry hampers were filled with clean clothes so there was nowhere to put my towel or dirty clothes. Folding it felt so far beyond what I was mentally able to process. I thank God for my incredible husband who stepped in and took it over, while I sat there crying and holding on to the towel.
Eating. Drinking. Walking. Talking. Even breathing felt pointless.
And sleep. I don’t know how long I had been without sleep but I know I was into night 3 at least because my husband was working his 3rd 12 hour shift that night and I hadn’t been to bed at all during that stretch of time. I had been purposely avoiding food and water because in the back of my mind I was thinking that the weaker I could make my physical self … the more tired and worn out and deprived I could become … the faster my body would give up at the end.
I had every aspect of my death planned out. How I was going to do it, where I would be, what I would be wearing, precise timing of everything, who would find me, details about my funeral wishes were written down and placed in my wallet with my ID and other important cards, etc
What I didn’t take into consideration was how weak and worn out I actually was. And the apathy … I didn’t care. I was completely shut down. I had been experiencing waves of emotion in between the numbness but for 3 days straight I was a zombie. I just gave up caring.
So those things paired with all the despair and brokeness I had been feeling resulted in a week long stay on the intensive care unit then a transfer to a different hospital an hour away, which is the only place that has a psychiatric inpatient unit in our district. And that’s where I’ve been for the past few weeks.
Being in the hospital is a challenge all by itself. But today I ventured out of my room and wandered into the main lounge where several staff members were putting up the Christmas tree. A security guard came with a guitar and began singing. After a while I joined in and for the first time since my Nan’s funeral 2 years ago, I sang in front of a group of people.
My pain level has been pretty extreme the past couple of days. I was diagnosed with Complex Regional Pain Syndrome (CRPS) around 7/8 years ago, after being in a pretty bad car crash. Many of my injuries fully healed while others became permanent problems. So the pain receptors in my brain are all messed up. They frequently send signals around my body, that basically scream DANGER, and various parts of me act as if they’re suddenly being crushed and shredded and ripped apart.
So that’s where I’m at today. On the couch with a heated blanket wrapped around me (many thanks to my clothes dryer!), my 2 dogs close by, hot lemon ginger tea, a bottle of morphine, and Netflix. But I feel like I’m about to lose my freakin mind! I can’t stand not being able to do stuff. To be still and quiet and just relax … its actually painful. Mentally painful. So I’m pretty well maxed out in the pain department today. I can’t say I’m overly surprised by this though.
Different things trigger these flare ups and determine the severity. Many times I don’t know what it was but sometimes I do. Right now though my guess would be stress. My mental illness is trying really hard to destroy me and my body has been on the receiving end of some not so healthy attempts to make myself not feel it. I never anticipated though that a bump on my head would cause my entire body to overreact like this. But here we are.
Sometimes I need to be reminded of things that are outside of this particular moment. I get so caught up in what I’m feeling rightnow or I get stuck in a memory loop, where I have one specific flashback that plays repeatedly, consuming me … I forget that I have an entire life outside of this place where I’m stuck. That’s where I have been discovering that any type of visual reminder, of a positive moment, helps me to become grounded. I have added a few videos and pictures to a folder on my phone and I’ve been sitting here in my bathroom, watching the videos on repeat.
This one shows a moment from this summer that has stayed with me very vividly. The way I felt in that moment was something I became very mindful of so I’m guessing that’s why I can feel it to be so real. I had been walking the beach near my house and my 2 dogs were with me. We’d had 2 days of rain so they were super happy to be outside and get to run around. When I stopped I took in all of my surroundings and I felt such an incredible warm feeling run through the center of my chest. Everything in that moment bordered on perfection. The direction of the sun, the temperature, the light breeze in my hair, the warmth from the sun shining down on my face, my dogs barking after each other as they zoom past me to chase each other through the salt water …
There are always things that you can cling to in moments of difficulty that can serve as an anchor. You might have one specific thing or many different ones. Whatever the case might be, use them. If you have to watch a 17 second video 29 times in a row to get the trembling in your bones to stop, then do it. You so deserve to be reminded of these moments of joy when the weight of depression is trying to crush you.
Having achors to keep you grounded is a great tool to have in your toolbox. One of my go-to skills.
The first time I thought about taking my own life I was 14. The first time I harmed myself I was 10. This is the reality of a 20 year battle with my health and truthfully, I’m still fighting.
I’ve struggled with being different my entire life. My insecurities have pushed me so far that I lost all value of my life. Sometimes I get a glimpse of what freedom looks like without feeling the guilt and shame for being different, but that’s all it is, a glimpse. I know that being different is a part of what makes me who I am. But the struggle to actually appreciate that is definitely real.
I don’t claim to live a life free of pain and frustration or even sickness. But I have grown a lot. My heaviness now coexists with a will to fight, and the fighter in me will have the final word.
Every day that I wake up is proof that I’m still fighting. Every hour that I don’t engage in self harm as a means of coping means that I’m still fighting. Every minute that I choose to speak truth even when my mind is screaming lies is proof that I’m fighting. But also, when I have a setback, it’s yet another chance for me to fight … again.
My reality includes a list of diagnoses that include mental illness and chronic pain, AND my reality is that I’m a complex girl who is the epitome of different, who is CHOOSING life. Everyday. And I promise you, no matter what it is that breaks you, hurts you, and makes you feel like giving up – your life is worth choosing, too.
Her Complex Musings 
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