Well, the comfort I was receiving from the hot water bottle was wonderful. Except, it was short-lived. Through no fault of its own though! That hot water bottle was / STILL IS an incredible tool in my Skills Box.
A lot has happened lately. Maybe a slight percentage has been a genuine response to trauma and/or illness, and not something I had complete control over …. but when you choose to do something, YOU are the reason it happens. So whatever happens is your fault, isn’t it?
I’ve put my body through absolute torture these past 2 weeks and its going to take a while to settle from it all. Unless you deal with it on your own personal level, absolutely no one will ever comprehend what its like to live with a brain that wants me dead.
I can’t help but feel a little jealous … I’m actually more than a little jealous, but I digress … of the ppl I hear and read about who also deal with depression, PTSD, eating disorders, BPD, dissociation, and so on who have found ways to still live productive lives and can maintain a level of stability that is acceptable in other ppl’s eyes. I’ve been dealing with this stuff for several decades … and I have yet to discover what ‘stable’ looks and feels like.
I don’t get angry very often but right now I feel absolutely PISSED – at everyone and everything. All I want is to be able to eat, drink, sleep, and socialize with other ppl the way other stable, functional human beings do every single day. It really isn’t that much to ask, is it?
I want to live … and experience things outside of survival. That’s all I want. I’ve totally got the survival part figured out. Now, I just want to live.
Those words were shared in an email response that I received from my psychologist last week. It had been a difficult session and afterwards, I spiraled. I emailed her in the midst of my upset and her brief reply ended with those words – Hope strengthens, fear kills.
Yes. I am scared. Terrified – of my own brain. I have no control whatsoever of the way it reacts to things anymore. Its like I’m dealing with a completely separate entity. I’m going about my day as if im babysitting some overly dramatic child that can’t be left alone for 2 minutes or else it’s going to get into something it’s not supposed to.
I got up after a nightmare that night and spiraled into the danger zone. I remembered that Magda (psychologist) had pointed out a couple of wins from the previous week (which I really appreciated) and she said that what I was doing was helping me grow my window of tolerance. In my frustration that night, I was like, “F* my window of tolerance. I’m not doing this”.
I want to be numb. I want to go back to the days when I was void of all emotion. I used to be so frozen inside but it’s like I’m thawing out now. I don’t want my thoughts to be so loud or sounds to be so clear. When my head was heavy and foggy and I barely even remembered conversations I didn’t have to deal with any of this stuff. My brain dissociated for a reason.
I feel like I’m going crazy. The fear is strangling me. Choking me. Killing me …
I’m afraid of what’s going to happen to me. So much fear, that I’m going to just snap, go totally crazy, lose my sanity entirely.
Fear. Its trying to kill me. The fear of uncertainty. Not knowing from one minute to the next what I’m going to think or feel. The fear that I’m not strong enough … that I might find myself completely alone and have to navigate it all by myself – again … that I’m going to collapse under all the pressure … fear that I’m going to start but never be able to stop crying …
Fear kills.
*Video clip of me in the midst of a panic attack*
BUT ….
she also said that hope strengthens. Hope. I need strength. I need hope. I’m not going to find either if I just wait around for it to fall into my lap though. So I must make it my daily goal to seek out hope. I know it exists in more than just the ink on my wrist. I see it around me. I see that other ppl have it. Its just that it never feels like there’s any for me.
If you want something in this world you have to go after it right? Well, I want to be strong. I want hope to fill me and strengthen me.
Identifying how I’m feeling has always been difficult for me. Although I must admit, I have come a long way in that area in recent years. In the past if you had asked me at any given point how I was feeling I wouldn’t have been able to answer you. I lacked not only the vocabulary necessary to describe the feelings but also the introspection. I had no concept whatsoever of emotions, what they were, or how they felt. I also had no idea that emotions also come with bodily sensations and could actually be felt in the body.
I have a much better understanding these days of feelings, though it’s not something that comes naturally. My first response to how I’m feeling is still the usual “I don’t know”, but I am learning how to pause and go inward. I take a moment to investigate and I can usually come up with something that somewhat describes my current emotional state.
Something else I also struggle with is identifying emotions and facial expressions in other people. I misinterpret a lot and it has led to many misunderstandings. I get insecure about not being able to pick up on emotions in other people so I observe, and I use what I see to figure out what the other person is feeling. The problem with that is that more often than not, I’m wrong. That slight shift in a facial expression does not always mean what I think it does. A raised eyebrow may make me think that the other person disapproves of something I said but that might not be the case at all. The other person may in fact be impressed, surprised, or even intrigued by what I had said.
For a long time I didn’t even know I struggled with emotions. I just thought I didn’t have very many. I’m almost always “OK” if you were to ask. It seems like that’s all I ever knew how to be. I couldn’t identify sadness, joy, excitement, contentment, and certainly not anger. I’ve spent my life so detached from myself that I had no idea these things even existed in me. Growing up I experienced a lot of unwanted emotions and as I got older they seemed to have just flattened out. I stopped feeling the varying intensities and the window of what I could actually feel grew extremely small.
So here I am, at the age of 42, realizing that I don’t know what it actually means to feel a certain way. And I have a very low tolerance for anything that takes me away from “OK”. Sitting with a feeling is a fairly new concept in my world and it’s turning out to be one of the most excruciating things I’ve ever experienced. My system jumps into high alert whenever I sense any sort of emotion inside of me. Whether my heart rate begins to speed up from excitement, fear, anticipation, lust, pain, joy, or whatever else may come up, my brain reacts in a way that propels me towards behaviors that shut it all down. I am working on this though.
A few weeks ago my therapist used the word alexithymia to describe one’s inability to identify and describe emotions. It is a word I had never heard before. I had no idea that my difficulties with emotions were something that other people out there experience as well. I thought it was just another thing I was bad at. One more thing on my never-ending list of character flaws. Something else that other people do with zero effort but requires so much work on my part. Another complexity. Another failure. Another fault.
But I’m beginning to realize that’s not the case at all! Alexithymia is a real thing that is not a character flaw! It’s not because I’m too stupid to understand emotions. It’s not because I’m an air-head, or that I’m dumb, or careless. It’s not because I’m a cold-blooded person who has no heart. It’s something that’s actually more common than I realized. So much so that it has warranted a label of its own.
So I just want to say that if you’re reading this and you find yourself relating to my experience in any way, I encourage you to do a little reading about alexithymia. It might very well help you understand why you feel (or don’t feel) the way that you do. There are a few websites in particular that I found really great at explaining it. I don’t usually post outside links here but if you are interested, feel free to ask and I will gladly share. It could open up a door to a completely new way of seeing things! Please be gentle with yourselves today. You all deserve it!
I’ve spent my entire life believing I’m not smart. I sort of “know” I’m smart, at least in some ways, but I usually still feel “stupid.”
Maybe what’s happening might be a form of an emotional flashback? Feeling young and vulnerable, operating from the same emotional mindset and with the same emotional tools as I did when I was a child? Possibly.
But another part of it is just good old fashioned conditioning. If we’re told over and over again that we’re stupid, we start to believe it. Repetition works its way into our brain, whether or not we initially believe what’s being repeated.
When the people SENDING the message that we’re “stupid” are people who have known us a long time, maybe who even share our name and DNA, maybe people we were dependent upon for years … it becomes REALLY hard to truly test or second guess that message.
The thing about the belief that I’m not smart is, there’s no way to really disprove it. Not to my satisfaction, anyway. Someone can point out lots of ways that I seem gifted or talented, and I’ll just counter that stuff by saying it doesn’t count.
Is that what a “mental filter” is? The thing where we decide that the good stuff about ourselves “doesn’t count” for various reasons … but all the bad stuff, well, of COURSE that’s all true. Is that what a mental filter is?
It’s all a bunch of BS in my opinion.
Smart people get treated like they are stupid every day. It has nothing to do with intelligence. It often has to do with someone’s desire to control us by lowering our self-esteem.
A part of healing, I think, is to consider the possibility that maybe, possibly, we ARE smart … that the people who told us we weren’t maybe had some other agenda.
My mind is constantly shifting, switching from one thought to the next, one memory to the next, one daydream to the next. I admire ppl who can focus on one task at a time and are able to lead productive lives.
I’ve been so frustrated lately with my inability to focus. I find my mind growing full of ideas for blog post topics. I wanted to make writing a central activity in my daily life once Christmas had settled down. I intended to turn writing into a therapeutic practice as well as a hobby. I love writing but I usually lack the motivation. So I decided to put my focus into growing this blog.
The only problem is that I’ve gone from unmotivated and lacking direction to becoming almost borderline obsessed with collecting ideas. I find myself super aware of things around me, even more than usual, as I search for things I can write about that would bring growth and add depth to this site.
See the thing is … while I haven’t been officially diagnosed with ADHD, I have undergone some testing and it has revealed that I do fall on the spectrum. The problem though is that the psychiatrist who I’ve been with is not at all open to the possibility of a new diagnosis. Despite having official testing done by a well respected psychologist, who did multiple different types of clinical tests to see where I am with regard to current diagnosis and other potential diagnostic possibilities … and even though she presented the findings in a written report to the psychiatrist, he was still unwilling to even consider the possibility of a new diagnosis.
Now in saying that, a diagnosis is merely another label. While it has added to the confusion I have about my identity as an individual, having a diagnosis that is agreed on by all the professionals is not completely necessary. It would certainly help me a great deal, that’s for sure! But I already KNOW I have a big problem with distraction. And focusing on one thing at a time is really difficult for me. I don’t need a diagnosis of something to know that.
But you know, I don’t think its a lack of attention that’s my problem. Quite the opposite actually. I feel like I have too much attention. I notice more than my brain is able to fully process at one time. I’m frequently distracted, yes. But not because I can’t pay attention. Its because I’m paying attention to everything. It seems like I hear more and see more and just notice more in general, than other ppl do. And that makes it super hard to fully focus on any one specific thing since I’m being distracted by all the other things that are coming at me at any given time. I have more attention than I know what to do with.
I have no idea if that makes any sense to you who is reading this because I’m trying to make … oh look! Squirrel!!
Oops. Sorry about that. So um, yeah. Where was I? Oh yes. So, I’m trying to make sense out of all of this myself to be quite honest. But if you agree/disagree or even relate in any way, feel free to leave a comment below and share your own thoughts about this topic! I’d love to hear what you have to say about this!
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