I Just Want To Live

Well, the comfort I was receiving from the hot water bottle was wonderful. Except, it was short-lived. Through no fault of its own though! That hot water bottle was / STILL IS an incredible tool in my Skills Box.

A lot has happened lately. Maybe a slight percentage has been a genuine response to trauma and/or illness, and not something I had complete control over …. but when you choose to do something, YOU are the reason it happens. So whatever happens is your fault, isn’t it?

I’ve put my body through absolute torture these past 2 weeks and its going to take a while to settle from it all. Unless you deal with it on your own personal level, absolutely no one will ever comprehend what its like to live with a brain that wants me dead.

I can’t help but feel a little jealous … I’m actually more than a little jealous, but I digress … of the ppl I hear and read about who also deal with depression, PTSD, eating disorders, BPD, dissociation, and so on who have found ways to still live productive lives and can maintain a level of stability that is acceptable in other ppl’s eyes. I’ve been dealing with this stuff for several decades … and I have yet to discover what ‘stable’ looks and feels like.

I don’t get angry very often but right now I feel absolutely PISSED – at everyone and everything. All I want is to be able to eat, drink, sleep, and socialize with other ppl the way other stable, functional human beings do every single day. It really isn’t that much to ask, is it?

I want to live … and experience things outside of survival. That’s all I want. I’ve totally got the survival part figured out. Now, I just want to live.

Be Gentle

Another restless night, tossing and turning, yearning for relief from the pain that’s raging in both legs and head. The demon of pain strikes much harder when vulnerabilities are high.
Tired.
Emotionally drained.
Quesy from a day of unhealthy erratic eating.
Cold.

Be gentle …

The demon of self contempt emerges from the shadows, tempting me to engage in the game we so often play. He pounces on me. Stupid! Fat pig ... More derogatory comments about being fat and choosing a Dairy Queen ice cream over black coffee. WEAK.

My quivering voice whispers, Be gentle …in return.

Be gentle …

You precious soul. I see you. I feel your pain. Breathe through it. I am with you.

Demons become angry, cursing me for allowing the presence of gentleness. Get out, they growl. How dare you show up here NOW. You’re too late. The damage is done.

Grief comes out of the shadows. Too much has been lost, she weeps.

Anger bursts forth, with vengeance. DON’T you dare give in. Gentleness doesn’t belong here.

Be gentle …

Out of the shadow creeps memory. Thoughts of the nightmare start toppling over one another. My body shivers and shakes, building momentum by the second.

Be gentle …

Fire shoots at me from the demon of harm. New pain sears it’s way into the flesh of my upper thigh and I gasp, breath catching in my throat.

Be gentle…

You darling child. I see how much it hurts. Here, hold my hand. Give me that flaming dagger. Let it go.

“Even though I walk through the darkest valley, I will fear no evil, for You are with me.” (Psalm 23)

Heavenly Father sits beside me on the cold tile of the bathroom floor and together we watch the demons fade into the darkness at the sound of His voice.

Be gentle.

How I Ended Up In The Psyc Ward

It all started when I went for my regular Ketamine infusion, which is part of my treatment for Complex Regional Pain Syndrome.

Felicia, the head nurse, asked if I was doing ok. She said I wasn’t looking like myself and that I was pale. I said I was good and that was all that was said. 



I remember lying back on the stretcher while they prepped me, putting heart monitoring stickers on my chest, attaching a BP cuff to my arm, oxygen in my nose … I was shivering and could feel tears running down from the corners of my eyes but i had no emotions. It was strange because that doesn’t usually happen. They took my hand to start an IV and I heard a faint voice in my head whispering – don’t touch me.

I remember turning my head to the side and just letting myself drift away. Don’t have any more memories about the treatment than that.

Once the infusion was done they wanted to talk to David. Felicia asked him how I’ve been doing lately. David later told me that he told her I’ve been purging a lot, that I’ve been quite depressed and that he’s been worried. Apparently she told him that I’m not looking well. That I was pale, my eyes were dark, and my lips were almost grey.

I was awake, my eyes were open, but I was non-responsive. My neck and head were spasming and I was staring off with no reaction when someone spoke or touched me. So they decided to keep me an extra hour to give me more fluids and more time to let the meds wear off. David asked if they felt I had taken anything and she said no because my vitals were all good. But they did bloodwork just to be sure. 

An hour later Felicia called David back in and told him that he needs to take me to the ER. Apparently I had been mumbling some things that no one could really pick out but Felicia had heard me say something about this being the end and it was almost time to die …. I don’t remember any of that. I’m just telling what I was told. 

So they put me in a wheelchair and David registered me in the ER, where I sat/slumped for 9 hours. David said I kept falling to the side as if I couldn’t hold myself up. He had to ask for a pillow and blanket to put around me to secure me a bit. He said I was in a completely different world.

Then they called us in to a small room that had nothing but 2 chairs bolted to the floor. And that’s where I spent the next 26 hours. It was nothing short of brutal.

Tears are burning my eyes now as I write that. I think it’s cruel how this was handled. They took me from the OR after having a procedure done and forced me to sit up on hard seats for a total of 36 hours. I was hallucinating. I was in terrible pain and developed a migraine. Had multiple bouts of vomiting. And I started experiencing opiate withdrawal because after I took my meds Thursday morning, I wasn’t given anything until Friday night. By that time I had missed 6 doses of morphine. It was torture.

David had to leave at one point. We had taken our dogs with us that morning. So David spent the entire day going from me in the hospital to the dogs in the car. He’d switch every hour. Take them for a walk, a drink, get them a snack then settle them in the car again before coming back in with me. But they couldn’t do that all night. So around 10pm he spoke to the staff. They assured him that I would be in safe hands and would be looked after so he left to go home with the dogs. Just before he left, he brought me in Zoey’s blanket from the car because he’d been asking for a blanket for me for 2 hrs with no luck. So I just kinda dozed off, sitting up in the chair, with Zoey’s blanket over me.

At one point I started to be more alert and I was really confused. I needed to use the bathroom but there wasn’t one so I left the room and just wandered around a bit. I went to the nurse’s station and asked if there was a bathroom and he said down the hall on the right. I roamed the hospital for a while. Took the elevator a few times, and eventually made my way back to that room. I called David, upset, wanting to know what was going on. When he realized that I was still there in that room – alone, he drove back to Grand Falls again at 4am. In the meantime, while hyperventilating and being trapped in that space with the chairs bolted to the floor, I clawed/scratched/cut my neck. 

David came, and he channeled his anger into fighting for me. He took me outside for some air then went and found a vending machine and got me a sandwich and water. I hadn’t had anything since 7am the previous day. Thankfully there was one nurse there on Friday that had a bit of respect and showed some compassion. She even gave me a little bit of her on personal toothpaste so I could brush my teeth. No one gave me a breakfast tray but she made sure there was one for me by lunch time. And she also contacted the necessary ppl to get my meds ordered. 

Then my psychiatrist came. It was still another long painful day sitting in that chair but by Friday evening I was admitted to the psyc unit.



And I’m still here. I am much more stable than I was over 2 weeks ago but still have a ways to go. Have no idea what is going to come out of this.

Sunburn As Self-Harm?

Would you consider getting a sun burn as self harm? 

Countless ppl get burnt by the sun every day, many of them on purpose. Ppl spend time in direct sunlight for the sole reason to burn their skin, correct? But they don’t get confronted about causing self harm …

This sparked a very heated conversation between David and me yesterday. He said he feels like what I did was self-harm (I intentionally got burnt).

Choosing Life

The first time I thought about taking my own life I was 14. The first time I harmed myself I was 10. This is the reality of a 20 year battle with my health and truthfully, I’m still fighting.

I’ve struggled with being different my entire life. My insecurities have pushed me so far that I lost all value of my life. Sometimes I get a glimpse of what freedom looks like without feeling the guilt and shame for being different, but that’s all it is, a glimpse. I know that being different is a part of what makes me who I am. But the struggle to actually appreciate that is definitely real.

I don’t claim to live a life free of pain and frustration or even sickness. But I have grown a lot. My heaviness now coexists with a will to fight, and the fighter in me will have the final word.

Every day that I wake up is proof that I’m still fighting. Every hour that I don’t engage in self harm as a means of coping means that I’m still fighting. Every minute that I choose to speak truth even when my mind is screaming lies is proof that I’m fighting. But also, when I have a setback, it’s yet another chance for me to fight … again.

My reality includes a list of diagnoses that include mental illness and chronic pain, AND my reality is that I’m a complex girl who is the epitome of different, who is CHOOSING life. Everyday. And I promise you, no matter what it is that breaks you, hurts you, and makes you feel like giving up – your life is worth choosing, too.