I Just Want To Live

Well, the comfort I was receiving from the hot water bottle was wonderful. Except, it was short-lived. Through no fault of its own though! That hot water bottle was / STILL IS an incredible tool in my Skills Box.

A lot has happened lately. Maybe a slight percentage has been a genuine response to trauma and/or illness, and not something I had complete control over …. but when you choose to do something, YOU are the reason it happens. So whatever happens is your fault, isn’t it?

I’ve put my body through absolute torture these past 2 weeks and its going to take a while to settle from it all. Unless you deal with it on your own personal level, absolutely no one will ever comprehend what its like to live with a brain that wants me dead.

I can’t help but feel a little jealous … I’m actually more than a little jealous, but I digress … of the ppl I hear and read about who also deal with depression, PTSD, eating disorders, BPD, dissociation, and so on who have found ways to still live productive lives and can maintain a level of stability that is acceptable in other ppl’s eyes. I’ve been dealing with this stuff for several decades … and I have yet to discover what ‘stable’ looks and feels like.

I don’t get angry very often but right now I feel absolutely PISSED – at everyone and everything. All I want is to be able to eat, drink, sleep, and socialize with other ppl the way other stable, functional human beings do every single day. It really isn’t that much to ask, is it?

I want to live … and experience things outside of survival. That’s all I want. I’ve totally got the survival part figured out. Now, I just want to live.

Hope Strengthens, Fear Kills

Those words were shared in an email response that I received from my psychologist last week. It had been a difficult session and afterwards, I spiraled. I emailed her in the midst of my upset and her brief reply ended with those words – Hope strengthens, fear kills.

Yes. I am scared. Terrified – of my own brain. I have no control whatsoever of the way it reacts to things anymore. Its like I’m dealing with a completely separate entity. I’m going about my day as if im babysitting some overly dramatic child that can’t be left alone for 2 minutes or else it’s going to get into something it’s not supposed to.

I got up after a nightmare that night and spiraled into the danger zone. I remembered that Magda (psychologist)  had pointed out a couple of wins from the previous week (which I really appreciated) and she said that what I was doing was helping me grow my window of tolerance. In my frustration that night, I was like,  “F* my window of tolerance. I’m not doing this”. 

I want to be numb. I want to go back to the days when I was void of all emotion. I used to be so frozen inside but it’s like I’m thawing out now. I don’t want my thoughts to be so loud or sounds to be so clear. When my head was heavy and foggy and I barely even remembered conversations I didn’t have to deal with any of this stuff. My brain dissociated for a reason.

I feel like I’m going crazy. The fear is strangling me. Choking me. Killing me …

I’m afraid of what’s going to happen to me. So much fear, that I’m going to just snap, go totally crazy, lose my sanity entirely.

Fear. Its trying to kill me. The fear of uncertainty. Not knowing from one minute to the next what I’m going to think or feel. The fear that I’m not strong enough … that I might find myself completely alone and have to navigate it all by myself – again … that I’m going to collapse under all the pressure … fear that I’m going to start but never be able to stop crying …

Fear kills.

*Video clip of me in the midst of a panic attack*

BUT ….

she also said that hope strengthens. Hope. I need strength. I need hope. I’m not going to find either if I just wait around for it to fall into my lap though. So I must make it my daily goal to seek out hope. I know it exists in more than just the ink on my wrist. I see it around me. I see that other ppl have it. Its just that it never feels like there’s any for me.

If you want something in this world you have to go after it right? Well, I want to be strong. I want hope to fill me and strengthen me.

And dammit, I deserve it!

How I Ended Up In The Psyc Ward

It all started when I went for my regular Ketamine infusion, which is part of my treatment for Complex Regional Pain Syndrome.

Felicia, the head nurse, asked if I was doing ok. She said I wasn’t looking like myself and that I was pale. I said I was good and that was all that was said. 



I remember lying back on the stretcher while they prepped me, putting heart monitoring stickers on my chest, attaching a BP cuff to my arm, oxygen in my nose … I was shivering and could feel tears running down from the corners of my eyes but i had no emotions. It was strange because that doesn’t usually happen. They took my hand to start an IV and I heard a faint voice in my head whispering – don’t touch me.

I remember turning my head to the side and just letting myself drift away. Don’t have any more memories about the treatment than that.

Once the infusion was done they wanted to talk to David. Felicia asked him how I’ve been doing lately. David later told me that he told her I’ve been purging a lot, that I’ve been quite depressed and that he’s been worried. Apparently she told him that I’m not looking well. That I was pale, my eyes were dark, and my lips were almost grey.

I was awake, my eyes were open, but I was non-responsive. My neck and head were spasming and I was staring off with no reaction when someone spoke or touched me. So they decided to keep me an extra hour to give me more fluids and more time to let the meds wear off. David asked if they felt I had taken anything and she said no because my vitals were all good. But they did bloodwork just to be sure. 

An hour later Felicia called David back in and told him that he needs to take me to the ER. Apparently I had been mumbling some things that no one could really pick out but Felicia had heard me say something about this being the end and it was almost time to die …. I don’t remember any of that. I’m just telling what I was told. 

So they put me in a wheelchair and David registered me in the ER, where I sat/slumped for 9 hours. David said I kept falling to the side as if I couldn’t hold myself up. He had to ask for a pillow and blanket to put around me to secure me a bit. He said I was in a completely different world.

Then they called us in to a small room that had nothing but 2 chairs bolted to the floor. And that’s where I spent the next 26 hours. It was nothing short of brutal.

Tears are burning my eyes now as I write that. I think it’s cruel how this was handled. They took me from the OR after having a procedure done and forced me to sit up on hard seats for a total of 36 hours. I was hallucinating. I was in terrible pain and developed a migraine. Had multiple bouts of vomiting. And I started experiencing opiate withdrawal because after I took my meds Thursday morning, I wasn’t given anything until Friday night. By that time I had missed 6 doses of morphine. It was torture.

David had to leave at one point. We had taken our dogs with us that morning. So David spent the entire day going from me in the hospital to the dogs in the car. He’d switch every hour. Take them for a walk, a drink, get them a snack then settle them in the car again before coming back in with me. But they couldn’t do that all night. So around 10pm he spoke to the staff. They assured him that I would be in safe hands and would be looked after so he left to go home with the dogs. Just before he left, he brought me in Zoey’s blanket from the car because he’d been asking for a blanket for me for 2 hrs with no luck. So I just kinda dozed off, sitting up in the chair, with Zoey’s blanket over me.

At one point I started to be more alert and I was really confused. I needed to use the bathroom but there wasn’t one so I left the room and just wandered around a bit. I went to the nurse’s station and asked if there was a bathroom and he said down the hall on the right. I roamed the hospital for a while. Took the elevator a few times, and eventually made my way back to that room. I called David, upset, wanting to know what was going on. When he realized that I was still there in that room – alone, he drove back to Grand Falls again at 4am. In the meantime, while hyperventilating and being trapped in that space with the chairs bolted to the floor, I clawed/scratched/cut my neck. 

David came, and he channeled his anger into fighting for me. He took me outside for some air then went and found a vending machine and got me a sandwich and water. I hadn’t had anything since 7am the previous day. Thankfully there was one nurse there on Friday that had a bit of respect and showed some compassion. She even gave me a little bit of her on personal toothpaste so I could brush my teeth. No one gave me a breakfast tray but she made sure there was one for me by lunch time. And she also contacted the necessary ppl to get my meds ordered. 

Then my psychiatrist came. It was still another long painful day sitting in that chair but by Friday evening I was admitted to the psyc unit.



And I’m still here. I am much more stable than I was over 2 weeks ago but still have a ways to go. Have no idea what is going to come out of this.

Saying Goodbye To Summer Is Making Me SAD

Oh boy. I’m really feeling the effects of the seasons changing this year. It’s like the end of summer has brought about some sort of strange grieving process.

When the alarm on my phone starts calling me up in the morning I open my eyes and with disappointment I discover that there is no sunlight bouncing on the walls now. Daylight is only just beginning to brighten my room. Over the past few months though, I’ve been waking at this same time to fresh, natural light and through the open window I hear the birds singing their good morning songs for me. This morning I was greeted with a chill in the air, that sent a shiver from head to toe, and silence. It will be months and months before my bedroom is bright, and sunny, and … welcoming at 6:00am again.

Upon waking every morning this week, my heart rate picks up speed and nausea rises from my stomach, stopping near the back of my throat just short of overflowing it’s wretchedness into my mouth. Repeatedly I swallow in an attempt to push it back down but it refuses to fully recede. It lingers there well into the late morning, making it difficult to get my daily doses of prescription meds into my body without gagging.

This morning I switched on my therapy light lamp. Does it actually work the way it claims? I have no idea. But it can’t cause any harm. So I will continue to bring as much light to my surroundings as possible. Darkness is not my friend and as I make my way through the next weeks and months I know that there will be much more of it. One can’t fight darkness with darkness. Only light can do that. So whether it be therapy lights, candles, lamps, the fireplace, or strands of twinkling lights strung from corner to corner, I know I need to start fitting it in wherever I can.

I hate this overwhelming feeling of dread that is growing inside of me. Every day it seems to fill another crook or crevice, weighing me down just a little more than the day before. Thoughts fill my head, convincing me that I will not make it through another unbearably cold and nasty winter. That I don’t WANT to make it through … And as the day goes on things feel increasingly pointless and the desire to take an extended nap has become quite appealing.

Then evening comes. As it approaches it brings with it an almost unbearable heaviness in my chest and a sick, unsettled feeling deep in the pit of my stomach. The beautiful colors of the late evening sunsets brought such warmth and peace to my heart over the past months. But now, those same vibrant bursts of color stretching across the sky bring tension and panic to my nervous system. Tears burn my eyes as I reach to turn on the lights inside my house and I angrily brush them away. No!! Not this. Not now. There must be NO tears. My stomach twists, tightening every organ on its way up to my throat, threatening to bring vomit. I swallow, gag, and swallow some more, wishing everything that I’m feeling would just go back down to wherever the hell it came from.

And so it begins. I fear what the upcoming weeks and months have in store for me. For now, the only thing I can think to do is to pull on a hoodie, slip my feet into a pair of fuzzy socks, and give myself permission to feel hugged by their warmth. I will light a couple of candles, take a few slow deep breaths and curl up on the couch next to my husband and fur babies. And as I try to draw whatever comfort I can from their presence I will remind myself that in this moment I am OK. I won’t think about next week or next month or Halloween or Christmas. Because right now, none of that matters. This is the only moment that counts and in this very moment, I am OK.

Still Here

A lot of us have been close to the point of not being here today. And if you’re reading this right now, I just want to say that you have more strength than you realize. Not everyone who woke up yesterday were here to wake up today. Surviving myself has been one of the biggest battles I’ve ever faced.

The fact that you are st;ll here is an incredible accomplishment and I want to be the one to tell you that I am so freakin proud of you!

Life Has Been Unraveling

My mental health has been on a steady decline for a couple of months now. There’s been a lot that’s happened, in succession, and the stress of it all has been accumulating. Trying to manage both physical and mental illnesses why all this life stuff has been coming at me was too much and I crashed. As a result, every area of my life is now suffering.

A little over 2 weeks ago something inside of me just cracked and I attempted to end my life. In a moment of desperation, needing the mental anguish to just stop, I chose what I thought would be the solution.

After spending the past 2 weeks in the hospital, in the Intensive Care Unit, here I am sitting in the car with my husband, as we travel to his parents’ place for a 60th birthday celebration (tomorrow). I was discharged yesterday, after being cleared as well enough to leave. I feel a million miles away right now. Certainly not in the frame of mind for a party. I really don’t want to be around people.

Can I just say one more thing?

Our health care system here in Newfoundland, Canada is … I’m biting my tongue here because every word coming to mind could get me banned from WordPress … so I’m just going to say … it SUCKS.

It’s sad. Based on my own experiences my heart aches for those needing services. If it happened to me then I’m sure it’s happening to countless others. 

In my opinion, if someone almost successfully takes their life and then sits in front of you and says they are not able to function because they are so mentally unwell, I don’t this it’s even sensible to suggest they develop a better sleep routine and that you’ll chat with them in 6 to 8 weeks.

Dude, if you ony knew the half of it ……

Suicide.

Even the word is evocative
And provocative
Charged with such emotion and energy.
Memories and thoughts of what was and what could have been
had I succeeded,
had I been successful.

A ‘Successful’ Suicide
What an oxymoron!
A failed attempt and all it leaves
Behind;
Surrounded by despair
That is now also dressed in anger.

The feelings of failure
‘I can’t even kill myself properly’
Let me die.
Please God
Let me go …….
This hurts so much.

Judgement
Where tenderness is most needed
Coldness
Where warmth and compassion are ached for

Their absence proof that staying is futile
Painful
Pointless!

I want a heart that can hear
Without defensive fear
Impatience and dismissal
Without accusations of selfishness
And attention seeking
Smirks and sneers
That cut deeply into my already fragmented self

Bring me a cup of tea
Sit with me
Don’t look away!
Show me tenderness
Truthfulness
Rawness
Be real

I’ve no interest in talks of helplessness And hopelessness
And ideation
And intention
And plans
And triggers

I need humanity
Not science
Not medical jargon

Hold my hand
Connect with me
Allow me to grieve my past self
Allow me to see myself through your eyes;
Help me see hope in you.
Give me some time and I will do the same for you.

Will You Remember I Existed?

Most days I feel as if I could just disappear and no one would notice, like midnight rain. And I’m not gonna lie, I prefer that for the most part. I’ve never been good with people, with expressing how I feel, and with letting anyone inside the walls I’ve built around me.

But there are these rare moments when I wish I created deeper connections with others. Moments when I long for conversations that feel like I’m having a glimpse of someone else’s soul, or sharing a piece of myself, even if it’s something as simple as a favorite song.

Most of the time I feel like no one would ever notice if I opted out of this world. But there are also days when I wish someone would just think of me and remember the sound of my voice or the way I laugh. It’s just a comforting thought, I guess, knowing that in this beautiful world full of busy people, I existed and somehow, I mattered.

I guess one could dream.

I’m Still Here

For the first time in weeks I feel a little bit like myself again. Its probably been more like months but the few weeks have been especially challenging. My mental health has been on a steady decline since the summer came to a close and then I took a nose dive and crashed head first into rock bottom.

There was no one single incident that took place to push me over the edge. I’d been fighting to hold on for a while and my rope just grew so thin that it broke. I’ve been so tired. Just the simple daily stuff has even been too much. Folding laundry had been leading to meltdowns. Once 2 then 3 baskets became filled with clean clothes I’d sit and cry because there was no basket for the dirty stuff. My husband walked in one day and found me sitting on the couch with a towel in my hand, sobbing. I had gotten out of the shower and our 3 laundry hampers were filled with clean clothes so there was nowhere to put my towel or dirty clothes. Folding it felt so far beyond what I was mentally able to process. I thank God for my incredible husband who stepped in and took it over, while I sat there crying and holding on to the towel.

Eating. Drinking. Walking. Talking. Even breathing felt pointless.

And sleep. I don’t know how long I had been without sleep but I know I was into night 3 at least because my husband was working his 3rd 12 hour shift that night and I hadn’t been to bed at all during that stretch of time. I had been purposely avoiding food and water because in the back of my mind I was thinking that the weaker I could make my physical self … the more tired and worn out and deprived I could become … the faster my body would give up at the end.

I had every aspect of my death planned out. How I was going to do it, where I would be, what I would be wearing, precise timing of everything, who would find me, details about my funeral wishes were written down and placed in my wallet with my ID and other important cards, etc

What I didn’t take into consideration was how weak and worn out I actually was. And the apathy … I didn’t care. I was completely shut down. I had been experiencing waves of emotion in between the numbness but for 3 days straight I was a zombie. I just gave up caring.

So those things paired with all the despair and brokeness I had been feeling resulted in a week long stay on the intensive care unit then a transfer to a different hospital an hour away, which is the only place that has a psychiatric inpatient unit in our district. And that’s where I’ve been for the past few  weeks.

Being in the hospital is a challenge all by itself. But today I ventured out of my room and wandered into the main lounge where several staff members were putting up the Christmas tree. A security guard came with a guitar and began singing. After a while I joined in and for the first time since my Nan’s funeral 2 years ago, I sang in front of a group of people.

Today, I feel hope.

What have you been putting off doing? Why?

EVERYTHING!!

Dishes … laundry … returning a call to my mom, who has been calling for 2 days but I don’t have the strength to pick up the phone and utter the word ‘hello’.

I’ve been putting off hanging a pile of shirts in our closet, but hey, at least it’s all clean..

I’ve been putting off some photo editing as well. I have a little over 120 pictures needing to be uploaded to my laptop, and sorted then edited but I haven’t been able to get in a clear frame of mind to even be able to think about it.

I’ve also been putting off something else… asking for help, telling somebody … because I anticipate that things will get a lot worse if I do. Depression has flooded every part of me, both physically and mentally. I have very little control over what enters my mind. From terrifying images that flash without warning to lines from songs that get stuck on repeat, over and over and over to absolute silence.

A couple of ppl know I’m not well but they aren’t in any position to help. My psychiatrist is out of the country until the new year. I have no more options. Unless … I go to my family doctor. Tell her how severe my insomnia has become. But I’ve been putting it off because …

I’m scared. I’m scared of having to answer any questions she may have because I really don’t want to talk about the fear, the dreams, the feelings, the memories …….