Well, the comfort I was receiving from the hot water bottle was wonderful. Except, it was short-lived. Through no fault of its own though! That hot water bottle was / STILL IS an incredible tool in my Skills Box.
A lot has happened lately. Maybe a slight percentage has been a genuine response to trauma and/or illness, and not something I had complete control over …. but when you choose to do something, YOU are the reason it happens. So whatever happens is your fault, isn’t it?
I’ve put my body through absolute torture these past 2 weeks and its going to take a while to settle from it all. Unless you deal with it on your own personal level, absolutely no one will ever comprehend what its like to live with a brain that wants me dead.
I can’t help but feel a little jealous … I’m actually more than a little jealous, but I digress … of the ppl I hear and read about who also deal with depression, PTSD, eating disorders, BPD, dissociation, and so on who have found ways to still live productive lives and can maintain a level of stability that is acceptable in other ppl’s eyes. I’ve been dealing with this stuff for several decades … and I have yet to discover what ‘stable’ looks and feels like.
I don’t get angry very often but right now I feel absolutely PISSED – at everyone and everything. All I want is to be able to eat, drink, sleep, and socialize with other ppl the way other stable, functional human beings do every single day. It really isn’t that much to ask, is it?
I want to live … and experience things outside of survival. That’s all I want. I’ve totally got the survival part figured out. Now, I just want to live.
I see you. I see how much it hurts. The pain just keeps multiplying and spreading. And yes! How right you are in thinking that the saying “Time heals all wounds” is a big old dirty pile of poo-poo.
You’re right! No one understands. How could they?! It’s frustrating, I know, sweetheart. But it’s not their fault. Nobody else on God’s great earth has walked in your exact footsteps.
So no, they don’t understand the kind of pain that bends you over and brings you to your knees like you were punched in the gut … but 10x worse than that. They don’t understand the kind of pain that hurts so much it’s wordless and that itself makes it hurt even more because you can’t say it out loud.
Beautiful Soul, I see you. I’ve heard every single time you’ve laughed and I’ve held you every time you’ve cried. How do you think you’ve made it this far?
Repeat after me: I am going to be ok.
I know you feel safe in the bathroom so stand in front of that mirror. Say it – again and again and again. That tear-stained face being reflected at you … tell her …
She’s going to be ok.
I am going to be ok.
I AM going to be ok!
Honey, I need you to hear me. LISTEN TO MY WORDS … ! I know it’s scary to trust what anyone says but you and I, we are the same! We are in this together. I am that little whisper you sometimes hear. You told Dr. Jeff about me. You told him that you wish you could hear from me more often and that I would be louder.
Well, here I am! I will become louder the moment you start to listen and trust that I, your true Self, want nothing but the best for you! I’ve got you.
I know it’s been a horror beyond words. Betrayal doesn’t cover it. Neither does violation. Neither does grief or heartache. No word exists for this kind of thing.
Sometimes it splits you, opens you, and spreads you apart. You find yourself trying desperately to hold together the pieces that are left. It hurts, to not know who you could have been, had things been different.
Except, it wasn’t.
Its time to accept the person you’ve become, and stop trying to be a version of you that only exists in your imagination. Pay attention to the person staring back at you. Love her!
That girl came through a crucible of fire to be standing here today. That girl is a beautiful soul.
Ernest Hemingway once said, “In our darkest moments, we don’t need advice.”
And I agree. What we truly need is connection: a quiet presence, a gentle hug, or the smallest gesture that reminds us we’re not alone. Those simple acts of kindness may very well become the anchors that keep us grounded when life feels overwhelming.
Pain is deeply personal. Each struggle is uniquely ours to face. But even if your presence is silent, it tells me I don’t have to face this stuff alone. It’s a quiet reminder that, no matter how broken I feel, I am still worthy of human connection.
Sometimes, words aren’t necessary. Silent support speaks louder than anything else does. Love and kindness, in its purest form, has the power to help us reclaim and restore ourselves, even when we have lost sight of who we are.
I just wanted to remind you of the importance of simply being there for each other because life is hard and being alone sucks.
There is a suicide epidemic in our country.
So reach out and hug someone, if you can. Without even realizing it, you could be saving a life. Maybe even be your own.
Some days you just gotta give in. Self-care today has consisted of a whole lot of nothing. No make up. No hair styling. An old pair of ripped jeans. (Which we all know are the best anyway) And an old baggy sweater. I’ve had slippers on over my fuzzy socks and a blanket has been kept within reach.
I am both mentally and physically exhausted. It’s day 4 or 5 of this recent CRPS flare. I’ve lost track, as the days and nights have kinda blended into one another. Chronic pain can be brutal on any level. But these flare-ups of Complex Regional Pain Syndrome push things to a whole different level.
My body can’t regulate it’s temperature. I go from shivering to sweating and back again in the blink of an eye. Even a light sensation of something against my legs or feet feels like razor blades slicing through my skin. I feel like my upper body is currently wrapped tightly in barbed wire with electricity shooting through it.
Up until last night, I have been pushing through, not letting the pain slow me down. But while picking up dog toys around the house before bed, nausea swept over me and the vomiting started. It was a long night of trying to lay still and keep my breath regulated because each time I moved I’d throw up.
So today, I was forced to prioritize rest. Maybe I should have done this before. But I guess in the back of my mind I just feel that by resting, I’m letting the pain win. I keep hoping that it will all be OK and will go away again in a day or 2. Except I should know by now that these flares never go away that quickly.
Rest is hard for me. Especially during the daytime. But I have to say that I actually enjoyed having this down time today. My boy was by my side (and my head!) all day. There’s such a profound level of comfort that comes with having a dog next to me. It puts my entire self at ease when I feel the warmth from their body against mine.
I ate without putting too much focus on good vs. bad food. I treated myself to some diet pop and chewed bubble gum like there was no tomorrow. Netflix took a chunk of my afternoon once I got caught up in a series called Cobra Kai and while I did do laundry, it still sits in the basket waiting to be folded. But hey, at least it’s clean!
Days like this require a lot of self-talk. Constantly needing to tell myself that it’s perfectly OK for me to rest, that it doesn’t mean I’m a fat, lazy, slob. Maybe this wasn’t actually an unproductive day. But rather a day where repair took place. Maybe even a little healing and restoration. Because my pain level has dropped from an 8 this morning to about a 4 or 5 here now at 9pm. So I must have done something right!
Life is better when you make space for what you love.
It truly is.
This world will rob you of every ounce of happiness that you possess – if you let it. You have to be intentional about giving yourself something to look forward to. You have to prioritize your joy. Because if you wait for happiness to come to you you’ll be waiting a long time.
It has taken me my entire life to figure this out. I’d long for something good to happen to me. I’d envy ppl when I’d see them smiling. And I’d look really closely at their face and read their body language because you can tell when a smile or a laugh is genuine. And my heart would ache for that feeling.
Now I am learning that it’s possible for every one of us to feel that joy – but we have to be intentional. Look for it. Seek it out. Listen for it.
It doesn’t always come naturally. Maybe it’s a song. If a piece of music stirs your soul then listen to it every day if you have to! Maybe it comes from walking along the beach with waves at your feet. Maybe it’s in your child’s laughter. It could come to you in your car with the window rolled down and the wind blowing through your hair or at the dog park as your dog plays with a new friend. It could bubble up within you when you look at a piece of art you just created or it could come from the smile on your grandfather’s face when you walk into his room.
Seek out these things. Make room for them. Stop waiting for happiness to come to you. You just might be surprised by what you find if you truly look for it! 🦋
As soon as I sit up in the morning the attack begins. The team of critics living inside my head open their ugly mouths and just let loose.
“You should go out somewhere today. You should socialize. You need to meet some people and at least pretend to be a participating member of society. You are such a baby! You can’t even handle calling someone and inviting them over for coffee!! You hate being alone … just as much as you like it. You’re impossible to please! Remember how awful the loneliness feels?!! You feel invisible. Forgotten. You’re very existence on this earth is pointless! You crave attention. You long to be part of society.
Yet as bad as it all feels you can’t get out of your own way! Grow up!!! Stop acting so foolish. You panic just thinking about allowing another person to get close to you. Fear paralyzes you when there’s a knock at your door. Ppl tell you to give them a call sometime but your hand trembles even at the thought of picking up the phone. Useless is what you are. You’re just a stupid, fat monster. No one would want to be around you anyway. Ppl are embarrassed to be seen with you. You’re deformed. Ppl stare at your shoulder and wonder why you only have one arm. Your ugliness is impossible to ignore and it’s all ppl see. You turn their stomach!! You stupid b!t@h …”
And on and on it goes.
While this is all true I did not choose this solitary lifestyle. Rather it chose me. I keep my distance from groups of people while often avoiding one-on-one interactions as well. The stress of human interactions has become something I now need to keep at a minimum because it seems as if my ability to tolerate stress and anxiety has dropped extensively.
I cannot withstand stress the way that I used to. All my life I have thrived on adrenaline and often find myself seeking out situations that will provide me with some sort of a rush but these days I find that the rush I get from the stress is a bit too much. I feel myself buckling under the heavy load that I carry around on my shoulders. I do my best and commit myself to things even though sometimes I push beyond my limits. I push and push and push until I break and fall apart.
Today though I am going to accept my limitations. I will not push myself to the point of breaking – physically or emotionally. What I have to offer today is all that I am going to give.
My in-laws are here visiting for a few days. They come 3-4 times a year and stay with us for a few days. And every time I end up falling apart behind closed doors. The pressure to be the perfect daughter-in-law gets me every single time. But I’ve had enough!
They are here in MY home and I refuse to give them the power to destroy my peace and joy. After arriving yesterday evening I prepared lasagna for them. David was at work so I was on my own. That part didn’t bother me because it was only for that evening, and then he’s off for a few days.
But I need to vent here for a minute because I’m just so … exasperated! They made a big deal about missing us and wanting to come and spend some time with us. They dropped their bags on the floor in the kitchen and sat at the table, their attention going to their cell phones. I sat and chatted with them but it would have been more entertaining had I just talked to the wall.
So I busied myself with the meal and clean-up and they got up and left the room. But not before pulling several bottles of alcohol from their bags.
By 8pm both of them were slumped over on the couch, asleep. David got home from work and just shook his head in disbelief. We know that they both have a problem with alcohol. But to drive 4 hours to visit your kids only to drink yourself into a semi-coma state within a few hours of arriving is ridiculous, in my opinion.
But I can’t take this personally anymore. Usually, I would beat up on myself by thinking that I was boring. I’d tell myself that they hate being around me and that I am so fat and ugly that they can’t stand to be in the same room as me. I’d spiral into believing that my house was not good enough. It’s too hot, too cold, not clean enough, my couch isn’t comfy, too much dog fur, the scented candle is too strong, my shower curtain is ugly, it’s too dark, too bright … and on and on and on.
No more. It has to stop! Over the years I’ve allowed my sanity to crumble every time they visit. It usually takes about a week after they’ve left for my nervous system to settle down. And I’m tired of it! This is MY home. It is my safe space and no one should have the power to ruin it for me. They will no longer cause me to become physically ill from the stress.
They are responsible for their behavior and if they decide to come here and be rude and disrespectful then that’s on them. David was looking forward to spending a few days with his mom and step-father. His mom keeps saying how she misses us but now that she’s here she shows no interest whatsoever in our lives. David was telling them something about his job and she literally interrupted him to show him a picture of a garden ornament that her friend had just bought. David looked as if she’d slapped him in the face. It broke my heart.
When we went to bed David and I were talking and agreed we can’t let this get to us. We will not allow this to pull us down. I’m done catering to them and walking on eggshells to avoid doing anything that they don’t like. I’m gonna go about things as I always do. I’m going to sit in my favorite spot. I’m going to have the temperature the way we have it every day. My dogs will play and make noise and I refuse to shush them or take their toys away. I’m not letting them turn my week upside down. I’m not going to stand in my closet to cry and I’m certainly not going to spend today in the bathroom throwing up from the anxiety like I did yesterday. Nope!
I’m not letting my peace be ripped away from me by other ppl. I work too hard to maintain my sanity on a daily basis to let you come into my space and strip it away. You can be you but I will be ME and I’m not going to end up sick from the stress of your presence in my home. Not this time.
We took our Buddy boy to the vet yesterday. It was a different animal hospital this time. We’ve been less than pleased with the service from our regular vet clinic in recent months so we reached out for a second opinion.
Right eyeLeft eye
Well, what I thought would be a simple eye exam and some new medication to treat this ongoing eye infection, turned out to be way more. $843 to be exact. I’m just grateful to have had the money available on my visa. The entire experience at that animal hospital yesterday was top-notch. From the time we walked in the door we felt welcomed. The girls at the front desk were so friendly! They gave Buddy treats (and sent us home with 2 FREE bags of them) and one girl was down on the floor with him, giving him snuggles and ear rubs. Buddy was relaxed and at ease right from the start. He tends to have high anxiety where he pants and sometimes shivers, but there was none of that!
Sitting contentedly, watching another doggy leaving with his mom and being very curious about the 6 week old rescue kitten bundled up in a towel in a woman’s arms.
So, long story short, Buddy has a rare type of severe bacterial infection in both eyes, that’s made up of 3 different bacteria strains. They did a swab to check for infection and found this out. Because it’s rare, the swab is being sent to a lab in Nova Scotia to determine which combo of antibiotics will treat it. It will take 1-2 weeks to get results back. While we’re waiting he’s on Prednisone drops (steroid) to reduce inflammation.
He also has cataracts in both eyes. I’m livid that no one told us this, despite having 3 eye exams already at the other clinic. She said that unfortunately it’s progressive, which means the cataracts will gradually grow bigger and multiply and he could potentially lose his entire eyesight. In humans they do surgery but in order to get that for dogs we’d have to travel to PEI to see an optometrist. There’s an animal hospital there that performs eye surgery.
Being curious about the voices on the other side of this door
But … he’s 8 years old, and overweight. A trip like that and to undergo such a surgery would do more harm than good. Right now she said that he’s seeing ok, except there’s a big black spot in his line of vision. It didn’t happen overnight and it’s something dogs adapt very well to. He probably doesn’t even notice the fact it’s there because it’s been gradual. But, it will continue to progress. This chronic inflammation and infection needs to be cleared up because it is causing the cataracts to grow and spread faster than they should. The pressure level in his eyes was also high so she checked for Glaucoma but that was negative. Hopefully that pressure will drop down again once the infection is under control.
She then went on to say he has quite a few symptoms of diabetes. Drinks a lot more water than most dogs, is overweight, has cataracts, has high eye pressure, and the lumps/fatty cysts he has over his body are really concerning. The previous vet told me I was overreacting and to not worry so much when we brought him in about 3 golf ball-sized lumps on his chest and ribs. So ….. off he went to get bloodwork and a urinalysis.
If I stare at it long enough, maybe this door will open!
David and I went there hoping that this vet took us seriously about his eyes but she was INCREDIBLE!! She was very thorough and clearly wanted the best outcome from him and she didn’t mind taking the time to do that. She told us to leave, go get lunch, and come back in an hour to go over the results and treatment plan. They even offered to keep BOTH Buddy and Zoey there if we wanted to go in somewhere to sit down for lunch. We took them with us though because I didn’t want to leave them there in a kennel, but it was super nice of them.
Such a good boy!
Boodwork came back … no diabetes!!! Thank God. His white cell count was elevated but that’s from the infection. Also, a few things showed up with his kidneys. And his urine was extremely diluted. Similar to plain water. He should be flushing out more toxins. So there are 2 rare medical conditions that he might possibly have which would explain everything but it requires further investigation. We have to measure his water intake over 24 hrs, 2 separate times. And we need to get an early morning pee sample to bring in. Which we’ll do when we go for my next pain treatment. She’s wondering if he has what’s called Diabetes Insipidus (different from sugar diabetes).
“”Diabetes insipidus (DI) is rare in dogs, and is characterized by excessive thirst/drinking and the production of enormous volumes of extremely dilute urine. Some dogs may produce so much urine that they become incontinent (incapable of controlling their urine outflow). The irony of this disease is that despite drinking large volumes of water, the dog can become dehydrated from urinating so much.””
Being comforted by Dad, after being poked and prodded
She told us that she’s only had 2 dogs in her career with it. But she’s the ideal one to treat it because she has it herself! She told us to NEVER restrict his water intake, especially until we figure out if he has it. He can become dehydrated even with regular water intake, and it could become deadly. She said she herself has to take medication for hers and if she misses it, in less than 3 hours she’s shaking and vomiting from dehydration, even if she drinks water. It’s very scary. It has to do with the pituitary gland not producing enough of the ADH hormone.
So, that’s where we’re at. We have pet insurance on them so we should get reimbursed for 50% of our vet bills. It’s still incredibly expensive. We’ve had several vet visits for him already this year (plus several with Zoey) and each time it’s been over $200. It’s adding up fast! But my are my world and we are going to do whatever it takes to have them healthy and happy.
So tomorrow morning I’ll start measuring his water. Then in a few days I’ll do it again then call in the numbers to the vet. Then they’ll check an early morning pee because it SHOULD be more concentrated. But if it’s still very diluted it will be safe to say that he has Diabetes Insipidus and will require medication for the rest of his life.
We’re also switching both of them to a high-fiber diet. She approved of the food we feed them. But prescribed a powder that we can add each day to increase the fiber. Or we could go with prescription food. Which she said is incredibly expensive. The powder was recommended because we already feed them with a vet recommended food.
My head is still spinning from all of this. But, one step at a time, one breath at a time. Hopefully the eye swab cultures come back soon and we can get him on the proper antibiotic to clear it up.
I had such a lovely day on Thursday and I slept a solid 6 hours, in bed, the night before. It has been ages since that has happened! I’ve been feeling bad about having such a limited supply of energy lately and not having the motivation to go out and do things. As a wife and a dog mom, as a human in general, I have been failing miserably. I haven’t been able to engage much because the majority of my mental energy is being spent on keeping myself alive.
So I reached out to my Aunt, who lives on the other side of the bay, and asked if they were going to be home and if it would be OK for us to go over to take the dogs out swimming. The beach has been gross here lately, full of green algae, and definitely not an ideal place for Zoey to be in the water. So I packed up a bag with a few towels, 3 bottles of water (one for each dog and David) and a bowl for them to drink from, sunscreen and off we went.
Zoey
Zoey’s excitement as we were walking down to the beach brought tears to my eyes. Buddy loves the beach but hates the water. He refuses to even get his paws wet. He’d rather explore, especially with all the different smells in an unfamiliar place. Zoey ran ahead and straight out in the water, jumping over the small waves as they came towards her. It felt like my heart was going to burst. It doesn’t take much to make me happy.
The temperature was perfect. Not too hot, with a slight breeze. And there was literally only one small cloud in the sky. It was the perfect shade of blue as far as the eye could see. I tried my best to take everything in and notice whatever I could, using all of my senses, because these moments don’t happen very often and I really wanted to remember this. I chose that particular location because of the sand. A lot of the beaches here in Newfoundland tend to be a bit rocky, making it difficult to walk with my balance issues, but this area was lovely.
Buddy
Zoey splashed along the shoreline in the water. Buddy zigzagged around us with his nose to the ground, taking in whatever scent he could. And being a beagle, a breed known for their hunting capabilities, he was in doggy heaven. And David and I walked for a while, holding hands, engaging in some random small talk.
Then he looks at me and says, “You should put your feet in the water. It’s not cold at all.” I looked at him and laughed. I was wearing jeans. “I’m not getting wet,” I said. David had shorts on and flip flops and had already walked in the water a little, getting his feet wet. “Just roll up your jeans. You’re wearing sandals anyway. Its ok if they get wet. They won’t be long drying.” I shook my head and continued walking along the sand.
Zoey (look at that smile!)
We were quiet for a while but I kept thinking about what he’d said. Lots of ppl love putting their feet in water. In movies I see ppl sit on the edge of pools or on the side of wharves, dangling their feet over the side. I’ve watched countless ppl walk along the shoreline, with the water covering their feet. It’s a normal thing lots of ppl do. So why does it seem like such an absurd thing for me? Why is it something I’m not allowed to do? What makes it so scary? Why does the thought of me doing something that others consider ‘fun’ fill me with so much discomfort in my body?
I had no answers and that bothered me. And I had no valid reason to not allow myself to walk in the water. All I knew was that I felt scared. The shame spiral began and my inner critic let loose, telling me how useless I was. Saying I was stupid and childish and a waste of space.
But I surprised myself this time. “Stop,” I said. Somehow I had found my voice and it took me a second to realize that I had said it out loud. It had been directed at the spiraling thoughts in my head but David stopped walking. I hesitated then bent down and began rolling up the leg of my jeans.
David’s flip flops
I don’t have the words to adequately describe how it felt to walk out in that water but I hope I never forget it. It’s like all of my problems just disappeared for a little while and I felt connected to something much greater. I smiled. I laughed. And at one point I even cried because I was so overwhelmed with something that felt good. I can’t label different emotions very well, other than it being either good or bad. But this felt absolutely incredible!
And Zoey … oh my goodness. It’s bringing tears to my eyes here now just writing about it. When she realized that I was in the water her excitement was almost too much for her to contain and she got the ‘puppy zoomies’. She ran circles around us, in and out of the water, jumping over the waves, then Buddy started chasing her around on the beach, and they were barking, and David and I just stood there laughing. Like, it was absolute pure joy surrounding all 4 of us and I don’t remember the last time I felt something like that.
Zoey
They say that salt water can cure almost anything. And I believe it. I’ve used salt water many times over the years to help promote healing in various physical ailments. But this was on a whole different level. The salt water may have only covered the lower part of my legs and feet but it felt like healing took place somewhere deep within my soul. It’s like, deep down inside, all of the broken and shattered parts of me felt … loved. I don’t know any other way to describe it.
And the little drops of salty water that fell from my eyes when I looked to the sky were my heart’s way of saying Thank You. Because it was as if God himself had wrapped His arms around me and said, ‘I got you’.
I am not gonna lie; I am not always okay. I will always tell you I’m okay, but sometimes I’m not being completely honest.
Sometimes, I just want to disappear. I want to stop living. Sometimes, I feel like I am not going to be alright. Like everything feels wrong, and I am so sad. I am really good at pretending that I am okay when I’m not.
At night, the darkness haunts me. The pain is trying to suffocate me when I close my eyes. I am just so lost right now. My smiles are fake and I feel like such a fraud. I’ve been wondering what went wrong. Why is this happening? Why am I so unhappy? Why do I feel so tired whenever I wake up?
I am so sick of this. I keep thinking that maybe someday I am going to heal. Maybe I will eventually feel whole, as opposed to broken. I will experience what its like to be happy and content. I crave wellness …
but I just can’t reach it. I don’t think its ever going to happen for me. I can’t stay like this. I don’t want to be in pain anymore. I don’t want to be sad over and over again.
I’m tired of reaching for something I want so bad but never being able to grab it.
Mental illness is so isolating. Your entire life becomes consumed with the illness, with treatment and survival. I find it so hard to be separated from other people and their joy in living. It is like a dark cloud hanging over my head all the time and I don’t want to infect anyone else with it, so I stay away .
I love seeing people happy and enjoying life but it’s like I live on an entirely different planet sometimes. Social media has become bittersweet. It provides me with a much-needed connection to other human beings, but it is also a harsh reminder of all the things I can’t do.
Being intentional about gratitude helps. It takes work. And like anything, it takes practice. The last thing you’re going to want to do when you see pictures of your peers having fun on a family vacation is to stop and be grateful. Especially when you feel like your own life is just a pile of ashes.
But I have to. I have to cling to whatever I can to be grateful for. Its mind over matter sometimes.
Her Complex Musings 
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